Sixth year and still active. Next january the group intimacy for the disabled will be going into its 6th year,and were still as strong as when we started on...
Hi Jeff, Yes, I did use it for a while years ago, with little relief. I ended up opting for a total hip replacement in 1990 (I'm now 52) and it completely...
Dear Friends, Beginning January 1, 2008, and as written in our bylaws, the Board of Directors of Arthrogryposis Multiplex Congenita Support, Inc., a 501(C)3 ...
What is intimacy for the disabled all about?? First intimacy does not always mean the sex act,there more to intimacy that that... This group is now going into...
hi guys, my name is emmett i'm secretary of the arthrogryposis association of ireland. we have a family who just joined our association and they were wondering...
Do a search on Freeman-Sheldon and see if this is what you are looking for. Denise Dogs are not our whole life, But they make our lives whole. [Non-text...
HI EVERYONE MY NAME IS TRACY, AND I AM AFFECTED WITH ARTHROGRYPOSIS, I USE TO COME AND POST ALOT AND CHAT ON AND OFF ALOT BUT THIS LAST YEAR OR SO I ALSO DEAL...
Hi Tracy! Im Brenda. I also have AMC. Im glad to hear your depression has improved! In your post you mentioned that your feet swell and that you have...
Do you need help in finding intimacy and love?? Do you have a physical disability and differences and think you might never find anyone for a intimate ...
hi everyone! i just found this group.. my name is Lea and i was born with AMC (lower extremities). i am 24 years old & from Hawai'i. I'm married & am an...
Hi Lea, Welcome!!! My name is Morne, and I'm 33 years old from South-Africa, and I'm an intern psychologist. Yep, like yourself I live with AMC but mildly...
Hi Lea, Welcome to the group!!! I think it's soooo cool that you participate in BB and canoe. I think it is normal to feel frustrated at times. I know I have...
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Denise Patterson
jrtowner2008@...
Mar 14, 2008 2:53 pm
I saw this advertised on another group. Could this be of any help to AMCers that have limited use of hands or arms? I have not used the product or ordered...
just wanted to remind everyone that AMCSI Convention 08 is near!! this years convention, our 3rd annual, will be located in Ohio in July. for more info go to...
My daughter is 24, born w/AMC. She is getting married this May. Future plans down the road are having children. I would like some advice or direction for her....
Hi Debbie, I'm 52 have all four limbs affected. No real manual dexterity in either hand, bi-lateral club feet and a dislocated L hip. I went for genetic...
Hey this is Neal from Canada. I have AMC also I am 60 yrs old and have 2 perfectly normal childern. I also have a grandson and a granddaughter on the way. My...
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Denise Patterson
jrtowner2008@...
Apr 9, 2008 4:48 pm
http://www.tagonline.org.uk/articles/International_Arthrogryposis_Symposium_for_Professionals.pdf Found an article and though the AMC's would be interested ...
Thank you everyone for writing me back, your stories helped. I'm still learning that there is alot I either did not understand or genetics has come a long way...
There are a lot more than two forms! The Text Atlas says 150! ... From: debbielanderbaker To: amc_adults@yahoogroups.com Sent: Wednesday, April 09, 2008 7:02...
I have AMC-Distal so you're in the right group. We are a mixed group of every kind of AMC. Denise Dogs are not our whole life, But they make our lives whole. ...
HI Debbie, Why don't you tell more about distal arthrogrypois. I for one would love to learn about it and I am sure others here would too. Nothing is too rare...
With a condition so rare that only one in 3000 babies born have this muscular disorder it's easy to comprehend how alienated anyone with Arthrogryposis...
Dear Lala Are you from amcsupport. org. i am a member there also.i can't afford to come although really want but it costs me a fortune.but for my sake please...
Hello,everybody, i am from China and a father of a boy 3 years old. My son has AMC and also spine curve. The baby suffered a lot from this disease and also...
