Im a 29 year old man, living in England, not much to special about me, but i was born with arthrogryposis multiplex, i got married 2 months ago on a very sunny...
3099
Neal Goldsmith
askher7
Nov 26, 2007 1:40 am
Dear strdeasy I am a 61 yr old man. I have been married for 28 yrs and have 2 perfectly normal kids, 1 girl and 1 boy and a grandson and another on the way. I...
3100
Kendall Conrad
angelwatt1
Nov 26, 2007 2:57 am
AMC is an umbrella term for a number of similar conditions. Only a small percent of these forms are hereditary so it is not likely that you'll pass it on, but...
3101
Heather Gilbertson
jasmin49_2000
Nov 26, 2007 3:33 am
Congratulations, I just want to add my pennyworth. I was worried I would pass it on to my children as I also have amc, so I went to see a genetic specialist,...
3102
FrogLegs611@...
lisalisa611
Nov 26, 2007 6:10 pm
My husband and I both have Arthrogryposis and almost two years ago we had a perfectly "normal" little boy. Since we both have physical limitations and our...
3103
Jason Hughes
hiwsnpt
Nov 26, 2007 8:38 pm
Hi, I'm 39 from Wales. I have AMC affecting the elbows. I waited and worried for years about having a child. I found committing very hard in case I let down...
3104
veronica-barrett@...
veronicabarr...
Dec 5, 2007 4:06 am
Veronica Barrett wants to talk with you using Yahoo! Messenger: Accept the invitation by clicking this link: ...
3105
who let the dogs out?
chris1h23
Dec 7, 2007 6:23 pm
Sixth year and still active. Next january the group intimacy for the disabled will be going into its 6th year,and were still as strong as when we started on...
3106
katebythesea2000
katebythesea...
Dec 8, 2007 6:32 pm
Hi Jeff, Yes, I did use it for a while years ago, with little relief. I ended up opting for a total hip replacement in 1990 (I'm now 52) and it completely...
3107
TERRY2745@...
terry2745
Dec 26, 2007 10:02 pm
Dear Friends, Beginning January 1, 2008, and as written in our bylaws, the Board of Directors of Arthrogryposis Multiplex Congenita Support, Inc., a 501(C)3 ...
3108
TERRY2745@...
terry2745
Jan 2, 2008 8:30 pm
Click here to apply for annual membership to AMCSI ~~ (Arthrogryposis Multiplex Congenita Support, Inc)_http://www.amcsupport.org/member.htm_...
3109
Denise
denipatterson
Jan 5, 2008 2:45 pm
Human disorders caused by the disruption of the regulation of excitatory neurotransmission. Steinlein OK.Institute of Human Genetics,...
3110
who let the dogs out?
chris1h23
Jan 7, 2008 4:48 pm
What is intimacy for the disabled all about?? First intimacy does not always mean the sex act,there more to intimacy that that... This group is now going into...
3111
tracey_schalk
Jan 12, 2008 4:33 am
What: 3rd Annual Arthrogryposis Convention put on by Arthrogryposis Multiplex Congentia Support Inc (AMCSI) (a 501 (c) 3 non-profit organization) ...
3112
Emmett
daly2ts
Jan 21, 2008 10:44 pm
hi guys, my name is emmett i'm secretary of the arthrogryposis association of ireland. we have a family who just joined our association and they were wondering...
3113
Denise
denipatterson
Jan 22, 2008 6:54 pm
Do a search on Freeman-Sheldon and see if this is what you are looking for. Denise Dogs are not our whole life, But they make our lives whole. [Non-text...
3114
Tracy
amc_jazzy_t
Feb 1, 2008 5:36 am
HI EVERYONE MY NAME IS TRACY, AND I AM AFFECTED WITH ARTHROGRYPOSIS, I USE TO COME AND POST ALOT AND CHAT ON AND OFF ALOT BUT THIS LAST YEAR OR SO I ALSO DEAL...
3115
Brenda
beekayn
Feb 2, 2008 12:18 am
Hi Tracy! Im Brenda. I also have AMC. Im glad to hear your depression has improved! In your post you mentioned that your feet swell and that you have...
3117
who let the dogs out?
chris1h23
Mar 4, 2008 4:44 pm
Do you need help in finding intimacy and love?? Do you have a physical disability and differences and think you might never find anyone for a intimate ...
3118
lea_pettit
Mar 7, 2008 1:32 am
hi everyone! i just found this group.. my name is Lea and i was born with AMC (lower extremities). i am 24 years old & from Hawai'i. I'm married & am an...
3119
morne vanWyk
vanwyk.morne
Mar 7, 2008 6:46 am
Hi Lea, Welcome!!! My name is Morne, and I'm 33 years old from South-Africa, and I'm an intern psychologist. Yep, like yourself I live with AMC but mildly...
3120
Brenda
beekayn
Mar 9, 2008 2:00 am
Hi Lea, Welcome to the group!!! I think it's soooo cool that you participate in BB and canoe. I think it is normal to feel frustrated at times. I know I have...
3121
Denise Patterson
jrtowner2008@...
Mar 14, 2008 2:53 pm
I saw this advertised on another group. Could this be of any help to AMCers that have limited use of hands or arms? I have not used the product or ordered...
3122
TERRY2745@...
terry2745
Mar 20, 2008 1:30 pm
just wanted to remind everyone that AMCSI Convention 08 is near!! this years convention, our 3rd annual, will be located in Ohio in July. for more info go to...
3123
debbielanderbaker
debbielander...
Apr 6, 2008 1:17 pm
My daughter is 24, born w/AMC. She is getting married this May. Future plans down the road are having children. I would like some advice or direction for her....
3124
katebythesea2000
katebythesea...
Apr 6, 2008 8:50 pm
Hi Debbie, I'm 52 have all four limbs affected. No real manual dexterity in either hand, bi-lateral club feet and a dislocated L hip. I went for genetic...
3125
Neal Goldsmith
askher7
Apr 7, 2008 4:27 am
Hey this is Neal from Canada. I have AMC also I am 60 yrs old and have 2 perfectly normal childern. I also have a grandson and a granddaughter on the way. My...
3126
Denise Patterson
jrtowner2008@...
Apr 9, 2008 4:48 pm
http://www.tagonline.org.uk/articles/International_Arthrogryposis_Symposium_for_Professionals.pdf Found an article and though the AMC's would be interested ...
3127
debbielanderbaker
debbielander...
Apr 10, 2008 5:54 pm
Thank you everyone for writing me back, your stories helped. I'm still learning that there is alot I either did not understand or genetics has come a long way...
3128
Beverly R Hanset-Burch
beverlyhanse...
Apr 10, 2008 8:07 pm
There are a lot more than two forms! The Text Atlas says 150! ... From: debbielanderbaker To: amc_adults@yahoogroups.com Sent: Wednesday, April 09, 2008 7:02...