I just happened to find this group on a search of arthrogryposis sites. Since this ailment only occurs once in 10,000 births, it's a comfort to know there's an...
Thank you. To you too. There is some pain but a day like today makes things a little easier to cope with. besides don't they say what doesn't kill you makes...
As a parent, I am wondering how much pain, when it started, and how often, dull ache or sharp stabbing.... just because or exercise induced.... Bev Bonnie is 3...
When I was about 5 my knees would hurt terribly and my mom would warm up towels as hot as I could stand and wrap each knee and it seemed to help quite a bit....
It was so nice to hear from some of you..Denise and Beverly. I'm in my 40's now and very fortunate to have my arthrogryposis confined to my arms and hands. I...
I just received an email from www.easycomforts.com and browsed their product offerings and they have some really great stuff! They have the button helpers..I...
Interested in purchasing an AMC awareness wristband? Go to _www.amcsupport.org_ (http://www.amcsupport.org/) there are hot pink or blue, kids or adult sizes...
I probably won’t be around much or I may lurch for awhile. On Monday night my boyfriend Scott died of a massive heart attack that came out of no where. He...
Betty, I am so sorry for your loss. Like everyone else has told you, I am sure he knew how much you loved him. It is times like this when one must look to...
Hello, I was born w/ AMC, and I never had diffuculties w/ pain until now. I have a lot of pain in my left hip all the way down to my foot. Sometimes, it's so...
Sometimes the pain is from the cartilage around the joint wearing out. If you have a limp, I would have them check your spine for changes in the lower discs....
hi im dan i hurt every where is this in my head or real i cant do anythiong any more when i drive i hurt now hands swell up thay have taken part of my...
Dear Fellow AMCer's, I'm attending the Texas convention and I'm helping put together a teen workshop. Part of this workshop will include me making a book like...
Hello everybody, i know there is a yahoo group about arthogriposis and I used to use it. But I lost the link....please coulde anybody kindly let me know the...
... teen workshop. Part of ... advice on personal care skills ... and I'm just leaving my ... know of any creative ways ... homemade sock aids!) I ... ...
Hello My Fellow-Driving-AMC'ers!! First of all I want to say ""THANK YOU"" to all who have participated in filling out the AMC Drivers Survey!! Your...
From Jenilee from amcsupport.org..... Hello My Fellow-Driving-Hello My First of all I want to say ""THANK YOU"" to all who have participated in filling out...
Hello Yahoo Members!!! We would like to invite everyone to our monthly AMC Chat being held tonight at 8pm EST. Please join us for this wonderful time to share...
... Hi Ashley, I have AMC, all 4 limbs affected. I had a similar pain as you describe here. I lived with it for months before going to my Dr. and it turned out...
Hello, I think its great that you are doing this, I myself have done many in-services for high schools, care centers etc. You are blessed to be a blessing to...
<<<< New Hello Everyone, My name is Sam, I'm 24 years old, born and living in Southern California. I too was born with Arthrogryposis. ( Mild Case ). I'm here ...
1. What type of AMC were you diagnosed with and how does it affect your driving abilities? All the doctors told my parents was that it was a form of AMC. But...
Hey AMCers & Families Please map yourself here http://www.frappr.com/arthrogryposismultiplexcongenita so we can get a general idea of where to hold future AMC...
hi my name is barb.im 45.iwas born with arthrogryposis.i cant wait to meet friends, _________________________________________________________________ Windows...
Hi Ann, I would like to meet you too. Do you use Yahoo messnger? Hugs Kim:* ann mcgraw <msbubbles44@...> wrote: hi my name is barb.im 45.iwas born with...
I would love to chat with you Ann. I don't have MSN messenger, just Yahoo messenger. My ID on Yahoo messenger is lollipops_beetween_my_toes. Hugs, Kimberly ann...
hey everyone, i'm new to the group, i just found it when looking for AMC groups. well anyway i should introduce myself... i'm Lisa, i'm 20, i'm from England...