I was wondering if anyone has had any MRI's done that show abnormalities in the bone marrow. For instance, spots that look like tumors in the bone marrow near...
2956
TUCMUM@...
tracinag
Apr 12, 2007 3:29 am
I know that everyone is different but when my husband with out AMC hurt his shoulder/and elbow the only thing that gave him relief was when he went to the PT....
2957
TERRY2745@...
terry2745
Apr 12, 2007 12:46 pm
In a message dated 4/11/2007 11:30:01 PM Eastern Daylight Time, TUCMUM@... writes: Also Theresa, with amc on here goes to a Massage Therapist that could...
2958
Denise
denipatterson
Apr 12, 2007 2:55 pm
On my MRI's, my legs show air pockets or sort of a spongy look, which I was told was found in some people with AMC. Denise Dogs are not our whole life, But...
2959
denisecsus
Apr 13, 2007 5:05 am
I mean, after 16 surgeries, 3 I "died" on the table, one left me with nerve damage and a crooked foot not to mention only 3 of the surgeries were remotely...
2960
beekayn
Apr 13, 2007 6:30 pm
A couple of you mentioned that your AMC had caused scoliosis which in turn caused diminished lung capacity. I was curious what doctors/therapists had been...
2961
Kenzie Harrison
kenz_1988
Apr 14, 2007 1:26 am
I didn't have breathing problems but the doctors were afraid I would so I started doing breathing exercises along with PT. They had me breath in, hold for ten...
2962
Brenda
beekayn
Apr 16, 2007 3:07 am
Thanks Kenzie. I think I will ask my doctor about what you describe. It sounds like we had a different experience with our treatment; I am sure they are ...
2963
Amanda Hall
amanda_lynn_...
Apr 16, 2007 5:36 pm
Hi Adrienne, I haven't had surgery, but I have had PT. It never did anything for me. All they could do is show me stretches and such. It always made my...
2964
Amanda Hall
amanda_lynn_...
Apr 16, 2007 6:08 pm
Hey, I am 27 years old, I've been in extreme pain with my AMC, they diagnosed me with nerve damage as well. I know what you mean, I feel as if mine has gotten...
2965
who let the dogs out?
chris1h23
Apr 16, 2007 6:33 pm
Mainly a support group for the physical disabled.. Were you disabled from birth?or became disabled early in your life or later??I myself was born with spina...
2966
mocha
megachik30
Apr 18, 2007 6:50 pm
Stem cell research is making a slowly moving toward passing through :). Here's a recent update on the issue -mocha ...
2967
janet cresswell
eastwood052003
Apr 20, 2007 12:50 pm
Hey all Welcome all members with amc I am Janet from UK and I am mobile by an electric scooter and adapted car All my limbs are affected and have had 26...
2968
TERRY2745@...
terry2745
Apr 23, 2007 12:29 pm
PLEASE help us out, this will be for the amcsupport Convention in Texas July 12-15th,2007 Feel free to add any questions/comments/suggestions that you Don't...
2969
tracey_schalk
Apr 27, 2007 6:05 am
Hello all, A Mom on the amcsupport.org had some questions about surgery to make her 9 year old daughters legs straight. Here is her messsage: My daughter,...
2970
jingai
jingai0
Apr 27, 2007 4:00 pm
Personally I would see a different doctor, or at least have him/her explain exactly why he must fuse her knees straight. If you get a second opinion and it...
2971
TUCMUM@...
tracinag
Apr 27, 2007 4:15 pm
Tucker's legs are straight and always will be in less he decides as an adult to change that... my thinking if why put a young child through something that...
2972
TERRY2745@...
terry2745
Apr 27, 2007 4:20 pm
"I ask you to try something: for one week, don't bend your knees in public. You can see for yourself the reaction you get. It will allow you to assess the...
2973
jingai
jingai0
Apr 27, 2007 4:30 pm
I understand your logic, but I just want to say that I am glad my parents decided to do both the functional and aesthetic surgeries while I was a child. It's...
2974
jingai
jingai0
Apr 27, 2007 4:50 pm
... No specific diagnosis other than AMC, but I assume it is the non- hereditary type given that no one else in my family is affected. Primarily, I need an...
2975
jingai
jingai0
Apr 27, 2007 4:58 pm
... I was asking the mother to do it. I know you aren't humiliated.. you never are. But not all of us share that same bubbly personality you have. You can't...
2976
Melissa Snyder
melissa3132003
Apr 27, 2007 5:20 pm
amen terry....lol..my names melissa and im a 21yr old with arthrogryposis...you should really try what she suggested. unless you have a disability you dont...
2977
jingai
jingai0
Apr 27, 2007 5:31 pm
Wow, someone on here that agrees with me. I'm shocked ;-) -Jonathan...
2978
Brenda
beekayn
Apr 27, 2007 6:32 pm
Well since the topic seems to be appearances, I will ask the group what is a scary question for me. I am considering some surgery for asthetic purposes. AMC ...
2979
Betty Hicks
missbetty38
Apr 27, 2007 6:36 pm
Traci, You practically ripped the words right out of my mouth. This is so true, why change something that works, this surgery will really make life harder for...
2980
Allyson
allycat70001
Apr 27, 2007 7:07 pm
oh my i'm not the only that swims with swin shoes, i hate the way my toes look and am currently trying to get them fixed. i wasn't going to post but i guess i ...
2981
jingai
jingai0
Apr 27, 2007 7:09 pm
Jaw problems are common with AMC. I have problems with the joints (I've broken both), but nothing resulting in aesthetic issues. Just pain from time to time....
2982
TUCMUM@...
tracinag
Apr 27, 2007 9:45 pm
Thank You so much Betty! I honestly can't say I was looking forward to going last night, I don't know it if bothered me more because I knew he wouldn't be on...
2983
Brenda
beekayn
Apr 28, 2007 2:51 pm
Hi Jonathan- I feel a little silly about it, and I guess that is why I was being vague. My jaw is slightly off center and it could be a little more prominent....
2984
Denise
denipatterson
Apr 28, 2007 2:53 pm
I think we got off track here a bit. First why does the doctor want to do the surgery. What benefits would the surgery have to your child? Usually a doctor...
