Hi I'm new to the group. I'm a mother of a 15 year old boy (RJ) and we live in Long Beach. RJ is using an electric chair and he has very minimal movement in...
Jane, That happens to be my middle name. Anyways, I’m 42 and I had to and still do, need help with my personal care as a kid and although I weighed pretty ...
Hi, I'm new to the group as well. My name is Melissa and i'm 21yrs old and was a college student at Mars Hill College in NC. As far as college goes, my advice...
I'm not sure about everyone else, I'm an old fart I was born in 1962 and by the time I was 7 I'd had more than 10 surgery's. And the last one was 12 yrs. ago....
Hi Jane, When I went to college a few years ago there were ample services for the disabled. You will need to call the college he wants to go to and set up a...
Hey Betty, Thanks for your response. Yeah for now I'm able to carry him.. but let me tell you I can tell every year he is definitely getting heavier. So... you...
Hi Casey I will definitely have my son start looking into specifically what each University can provide for him. He is basically very dependent and his limbs...
Hi Traci, I'm confused.. your email started out saying out in Wisconsin but in the end you signed off saying Traci in Centrail California.. Are you in...
I started my email out by adding to what Betty had said my Highlighting what Betty had already said. Yes I am in Ca. I live in Tulare near Fresno. Traci ...
Sorry I sent to soon. Each county had a different number, I will call and see if they can give me the one for what is it Long Beach? Or maybe I will be able to...
Hi Jane, I'm Kenzie I am 18 and I am going to graduate high shool in May. I had an aide at school and use a scooter/electric chair.I am not quite as dependent...
I didn't need any personal care help in school, but i did start actually at a non public college. I was very nicce for me at the time because it was small, ...
Actually its very very easy to use and 1000% improved. I've been working with people train them in the use of this software for about 6 years now, which is one...
Hi Jane, Welcome to the group! I'm 19 and I've been in college for 1 1/2 years and disability services is amazing in comparison to the IEP process in high...
I just wanted to say hi and welcome all the new members to the group. My name is Ilyce and if you feel like talking please let me know, just post here on the...
Hi Tracey So what is a MFE? So basically towards the end of his senior year we should do like a closing IEP huh? Usually we do it a month or two after school...
Jane, I went to school for Human Services, of course the first day of class the teacher said you guys are entering the worst profession if you are trying to ...
Betty, is right about Division of Vocational Rehabilitation. I have gotten stuck with them twice in my lifetime, the first time was when I was 17, it took me...
Hey, I am curious if any of you have neurological problems. I've read that some people with AMC have neurological problems. Please write me back if you do. I...
I am new to the group. I am 30 years old and have Arthrogryposis. I have had problems with my voice (along with other problems :). It is quite soft. People...
I could only wish my son had this problem! He has AMC but never a problem being heard! My daughter that don't have it can have ten friends over and you would...
I have voice problems. My voice is almost gone but it isn't from AMC, its from a lung restriction. AMC caused scoliosis and the scoliosis is crushing my lungs....
Hi Roxi I have scoliosis too, and lung restriction. Last time I was tested I had 35% of expected capacity. I had to start using oxygen at night (and...
I am 46 and have had the same vocal problems. I have scoliosis too and was told my spine was interfering with one side of my vocal cords so that it was not...
Well, I guess there is at least three of us! You said people mistake your sex because of it. I am often mistaken for a child. I get "is your mom or dad...
Jane Have you looked into getting lifts installed? A couple of companies that send me advertisements have websites Sure Hands is at www.surehands.com And...
People always ask me if my mom or dad's home when I call to make appoinments places or someone calls the house lol. I don't know why though my mom says my...
Hey everyone, My name is Adrienne I'm 27 years old and have AMC. Recently my doctor refered me to a sports med. guy who on my first visit there gave me...
