hi, my name is Tim, I'm 45 and from Ohio. I have never met anybody else with this real cool condition Arthrogryposis. But I knew that I couldn't be the only...
Hey Tim, Welcome! My name is Tracey, I'm 19, I have arthrogryposis and I'm from Ohio as well!! If you're really interesting in meeting lots of people with...
Hi Tim I am Janet I have AMC in all limbs and am 45 years I live in UK If you have any questions about my amc or my life please contact me Regards Janet blue...
Hi Tim, I'm Kenzie from Illinois. I'm 18 and I have AMC also. captkaos45654 <captkaos45654@...> wrote: hi, my name is Tim, I'm 45 and from Ohio. I have...
Hey Tracey, My name is Anna I'm 25. also from Ohio and have arthrogryposis. What part of OH are you from? tracey_schalk <tracey_schalk@...> wrote: Hey...
Hey Anna, I moved to Marion in September 2006 to go to Ohio State's regional campus here. What type of AMC do you have? Any surgeries? I have amyoplasia and...
DO YOU OWN A COPY OF ARTHROGRYPOSIS A TEXT ATLAS that you would like to donate?? by Lynn T. Staheli (Editor), Judith G. Hall (Editor), Kenneth M. Jaffe...
Hallo Everyone This is Dimitra & Melina from Greece. Melina is doing great and she is becoming a great swimmer, though she adores soccer. Just to let you know....
Dimitra, Is he saying he doesn’t like it because she doesn’t swing her arms? If it is, that is stupid, why does it matter if she swing her arms or not? I...
What exactly is wrong with trying to make her walk look more natural? If he can do something to make her fit in a bit better, why not? Not everything in life...
Dimitra, I can't walk on my own I use crutches. However, when I was little I had alot of pt. My opinion is the doctor probably wants her to swing her arms when...
actually there is a great reason for this and yes please please do it. it is because of the type of surgery she had, Illizarov. With the Illizarov they do not...
PS i do not recomend this operation in the US, stick with cutting and legthen, makes a lot more sense. however, do you homework before any operation and use ...
Wouldn't there have been improvements with the procedure in the US...like you said, its been 10 years since you've had it done. A lot of changes can happen...
i'm sure it has gotten better. hence why i said do your homework. this operation is still even now, still a very very painful and rough one. many people know ...
heck I'd go to Europe if I had to have that done.... Of course I'd travel around there first :) Europe seems to have a knack for doing many things *right* -s...
wish i did, hell if i knew what it was going to be like i would have a made a deal w/ parents, i was around 7 when i had it to at least take me to disney world...
For what it's worth, mine were pretty severely turned in and I had mine cut and lengthened about 3 months after birth. The ankles were then fused shortly...
Hi I'm new to the group. I'm a mother of a 15 year old boy (RJ) and we live in Long Beach. RJ is using an electric chair and he has very minimal movement in...
Jane, That happens to be my middle name. Anyways, I’m 42 and I had to and still do, need help with my personal care as a kid and although I weighed pretty ...
Hi, I'm new to the group as well. My name is Melissa and i'm 21yrs old and was a college student at Mars Hill College in NC. As far as college goes, my advice...
I'm not sure about everyone else, I'm an old fart I was born in 1962 and by the time I was 7 I'd had more than 10 surgery's. And the last one was 12 yrs. ago....
Hi Jane, When I went to college a few years ago there were ample services for the disabled. You will need to call the college he wants to go to and set up a...
Hey Betty, Thanks for your response. Yeah for now I'm able to carry him.. but let me tell you I can tell every year he is definitely getting heavier. So... you...
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