I AM 40 N0W HAVING MORE SURGERYS REALLY HURT BAD NOW ALL OVER THROING UP DOES ANY ONE ELS HAVE THIS PROBLEM AND DO I HAVE ANY RIGHT FOR BETER LIVING...
2283
Disability With A Smile
arthrogrypos...
Jun 19, 2005 9:03 pm
Hi Everyone Besides swallowing problems are you having problems with slobbering? I am and times I find myself slobbering and doing it in public and not sure...
2284
daniel Stallsworth
danielson196...
Jun 20, 2005 3:33 pm
HI MY NAME IS DANIEL FROM SOUTHERN OREGON I HAVE AMC I HAVE HAD MANY SURGERYS MY HANDS MY WRIST I THINK I LOST PART OF MY COLLEN OVER THIS NOW I...
2285
jtrenblv
Jun 20, 2005 4:32 pm
I live in Las Vegas. The local newspaper (the Las Vegas Review Journal) had an extensive article yesterday on a new and very successful surgery for scoliosis....
2286
Tina Lewis
mommy111603
Jun 21, 2005 4:46 pm
When my daughter was born she had problems swallowing too. Partially it was because her muscles weren't developed but her jaw was also too small and required...
2287
Amanda Hall
amanda_lynn_...
Jun 21, 2005 9:14 pm
Hello Everyone, I was wondering if any of you have Myopathic Arthrogryposis Multiplex Congenita. I've had AMC since birth, but recently found out it was...
2288
Beverly R Hanset Burch
beverlyhanse...
Jun 21, 2005 9:20 pm
What kind of surgery? At what age? ... From: Tina Lewis To: amc_adults@yahoogroups.com Sent: Tuesday, June 21, 2005 9:45 AM Subject: Re: [Adults AMC]...
2289
janet cresswell
eastwood052003
Jun 21, 2005 9:45 pm
What does Myopathic mean? I have AMC in all limbs, hands and feet. Janet UK...
2290
Amanda Hall
amanda_lynn_...
Jun 21, 2005 10:45 pm
Myopathic changes refer to clinical signs (weakness or the findings of a muscle biopsy) that suggest a muscle disorder, such as muscular dystrophy. ... ...
2291
janet cresswell
eastwood052003
Jun 22, 2005 10:06 pm
Thanks Amanda for explaining that for me. I would not say my muscles are getting weaker but I am definately getting stiffer and less mobile as I am getting...
2292
Laura Anderson
montanagigi
Jun 23, 2005 8:00 pm
Hi Amanda~ Got a copy of your email and wanted to write. I have Myopathic Arthrogryposis etc, and if you wanted to write we could 'share' info. Hope this...
2293
Disability With A Smile
arthrogrypos...
Jun 25, 2005 5:51 am
Hi Everyone Through the courtesy of www.CochiseAbility.org we have chat rooms for groups who would like to have their own room. This is very easy and all you...
2297
Betty Hicks
missbetty38
Jun 30, 2005 6:48 pm
Wanted to let everyone know that I will be gone for a few days and not sure when I'll be back. Getting out of Madison for the 4th of July. Madison gets...
2298
Disability With A Smile
arthrogrypos...
Jul 3, 2005 5:26 pm
Hi Everyone Happy Fourth of July...because of the holiday, I have canceled the CochiseAbility AMC chats today, SUNDAY the 3rd and next SUNDAY the 10th. Both my...
2299
Disability With A Smile
arthrogrypos...
Jul 7, 2005 6:38 pm
Hi Everyone, Through the courtesy of www.CochiseAbility.org, chat rooms are available to be used by group members. This is very easy and all you have to do to...
2300
Beverly R Hanset Burch
beverlyhanse...
Jul 12, 2005 8:12 pm
Just wondering if anyone has had any experience going from Medicaid to private insurance. I think we are about ready to and just was curious what were the...
2301
janet cresswell
eastwood052003
Jul 16, 2005 10:43 pm
I have posted my website on the links section of AMC adults. Please view, hope you like it. Janet UK...
2302
amc_adults@yahoogroup...
Jul 17, 2005 2:02 am
We would like to remind you of this upcoming event. AMC Chat Date: Sunday, July 17, 2005 Time: 7:00PM - 8:00PM MST (GMT-07:00) Sunday 7:00 P.M. - 8:00 P.M....
2303
janet cresswell
eastwood052003
Jul 17, 2005 3:28 pm
2304
amc_adults@yahoogroup...
Jul 17, 2005 8:03 pm
We would like to remind you of this upcoming event. AMC Chat Date: Sunday, July 17, 2005 Time: 7:00PM - 8:00PM MST (GMT-07:00) Sunday 7:00 P.M. - 8:00 P.M....
2305
Miss Shortness
shortypimpin69
Jul 20, 2005 12:09 pm
Hello... My names Rynita I'm 28 I have Arthrogryposis... I do my thang, I'm super funny, cute, indapenent, and crazy... I'm a profecianal DJ (tuntableism not...
2306
TUCMUM@...
tracinag
Jul 21, 2005 3:34 am
Rynita, I just got done reading the story on you, it was awesome. That is how I am raising my son to be. He don't know the words "I can't" he is 7 years old...
2307
Miss Shortness
shortypimpin69
Jul 21, 2005 11:25 pm
Tracy, Thank you for being strong enough to let your son go his own way. Many abled bodied people have a hard time imagening all the things WE CAN do. We just...
2308
Denise
denipatterson
Jul 22, 2005 5:12 pm
I don't know when this was posted. It is on Avenues web site Trismus Pseudocamptodactyly Syndrome Study Seeking Subjects From: Craig T. Basson, MD, PhD ...
2309
amc_adults@yahoogroup...
Jul 24, 2005 1:02 am
We would like to remind you of this upcoming event. AMC Chat Date: Sunday, July 24, 2005 Time: 6:00PM - 8:00PM MST (GMT-07:00) Sunday 6:00 P.M. - 8:00 P.M....
2310
CHRIS JOHNSON
cpjohns964
Jul 26, 2005 2:43 pm
Hello Everyone: Once again we are trying to set up our annual AMC Picnic. Please pick which date would be good for you and email us back directly (off list)...
2311
para_quad
Jul 27, 2005 2:53 pm
Hi Im new to the group, Im 42 years old and have amc. I am from New Zealand, but have lived in australia for over 4 years. As I am getting older, Ive noticed...
2312
Disability With A Smile
arthrogrypos...
Jul 30, 2005 8:28 pm
Hi Everyone Can this help anyone? http:www.skateseat.com/index2.htm I thought it was really cool. Let me know... ... Start your day with Yahoo! - make it your...
2313
Miss Shortness
shortypimpin69
Jul 30, 2005 9:43 pm
If it wasnt so close to the ground it would be awsome!!! ... was really cool. Let me know......
2314
amc_adults@yahoogroup...
Jul 30, 2005 11:02 pm
We would like to remind you of this upcoming event. AMC Chat Date: Sunday, July 31, 2005 Time: 4:00PM - 6:00PM MST (GMT-07:00) Sunday 6:00 P.M. - 8:00 P.M....
