ok, I FINALLY have a few minutes to write!!! HA it sure has been a busy year! & I hope everyone is doing well. I thought while I had a 1/2hour or so b4 Im...
Hi my name is jennifer I have arthrogryposis, n my grandmother was givin a medicene called des(diethylstilbestrol) witch causes birth defect, n it not...
June 8, 2005 Hi Everyone Through the courtesy of www.CochiseAbility.org we have chat rooms for groups who would like to have their own room. This is very easy...
DES has never been proven to cause AMC. AMC is an umbrella name for about 150 types. Arthrogryposis is just a description meaning contractures of multiple...
No past generations of mine that I know of took des. I didn't get the condition through heredity, though I never had it determined exactly how I came about it,...
Hey People, I was wondering if any of you have been to any arthritis clinics? If so, tell me did it help. Can you name some type of doctors that you think will...
hi yes there is a pill called mobic i take im still learning about it my self i was left in the dark plus im on perkaset now maby a PAIN PUMP MY YAHOO...
I went to one. It never helped me but then the doctor never heard of AMC. I took a few drugs but have had so many reaction to them it is not funny. I take...
I was wondering if anyone has had problems swallowing. I have always had some problems with big pills and stuff but here lately I have been having problems...
I don't have trouble swallowing per se however I have sleep apnea - where my throat closes up when I'm asleep. I've been to a variety of Drs for this and my...
I too am having more difficulty swallowing as an adult. I used to have trouble chewing certain foods (still do), but just attributed it to lack of jaw...
I AM 40 N0W HAVING MORE SURGERYS REALLY HURT BAD NOW ALL OVER THROING UP DOES ANY ONE ELS HAVE THIS PROBLEM AND DO I HAVE ANY RIGHT FOR BETER LIVING...
Hi Everyone Besides swallowing problems are you having problems with slobbering? I am and times I find myself slobbering and doing it in public and not sure...
I live in Las Vegas. The local newspaper (the Las Vegas Review Journal) had an extensive article yesterday on a new and very successful surgery for scoliosis....
When my daughter was born she had problems swallowing too. Partially it was because her muscles weren't developed but her jaw was also too small and required...
Hello Everyone, I was wondering if any of you have Myopathic Arthrogryposis Multiplex Congenita. I've had AMC since birth, but recently found out it was...
What kind of surgery? At what age? ... From: Tina Lewis To: amc_adults@yahoogroups.com Sent: Tuesday, June 21, 2005 9:45 AM Subject: Re: [Adults AMC]...
Myopathic changes refer to clinical signs (weakness or the findings of a muscle biopsy) that suggest a muscle disorder, such as muscular dystrophy. ... ...
Thanks Amanda for explaining that for me. I would not say my muscles are getting weaker but I am definately getting stiffer and less mobile as I am getting...
Hi Amanda~ Got a copy of your email and wanted to write. I have Myopathic Arthrogryposis etc, and if you wanted to write we could 'share' info. Hope this...
Hi Everyone Through the courtesy of www.CochiseAbility.org we have chat rooms for groups who would like to have their own room. This is very easy and all you...
Wanted to let everyone know that I will be gone for a few days and not sure when I'll be back. Getting out of Madison for the 4th of July. Madison gets...
Hi Everyone Happy Fourth of July...because of the holiday, I have canceled the CochiseAbility AMC chats today, SUNDAY the 3rd and next SUNDAY the 10th. Both my...
Hi Everyone, Through the courtesy of www.CochiseAbility.org, chat rooms are available to be used by group members. This is very easy and all you have to do to...
Just wondering if anyone has had any experience going from Medicaid to private insurance. I think we are about ready to and just was curious what were the...
We would like to remind you of this upcoming event. AMC Chat Date: Sunday, July 17, 2005 Time: 7:00PM - 8:00PM MST (GMT-07:00) Sunday 7:00 P.M. - 8:00 P.M....
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