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amc_adults · Adults With AMC (Arthrogryposis)

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Group Information

  • Members: 604
  • Category: Disabilities
  • Founded: Jul 4, 2001
  • Language: English
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Messages 2258 - 2290 of 3624   Oldest  |  < Older  |  Newer >  |  Newest
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2258 Disability With A Smile
arthrogrypos... Send Email
May 6, 2005
2:30 am
Event Name: CochiseAbility Chat SessionsDate: Saturday, May 7, 2005Time: 7:00pm-9:00pm Repeat: every week.Description: On Saturdays, CochiseAbility will be...
2259 Michelle
lamaking2000 Send Email
May 11, 2005
6:37 pm
I would return to your doctor and inform them of what is going on, then request to have another therapist handle your case. You need to remember, YOU know more...
2260 becky deaver
beck0912 Send Email
May 12, 2005
1:00 am
Michelle Thanks for your information. I actually did go back to my Dr. and she said exactly what you did... water therapy. Again thanks Becky ... ...
2263 amc_adults@yahoogroup... Send Email May 18, 2005
8:13 pm
Enter your vote today! A new poll has been created for the amc_adults group: What time frame would be best for a chat on the days for Mountain Standard time. ...
2264 amc_adults@yahoogroup... Send Email May 18, 2005
8:16 pm
Enter your vote today! A new poll has been created for the amc_adults group: What days of the week would be best for a AMC-chat at CochiseAbility.org? o...
2265 Brooke
giggles_meus Send Email
May 24, 2005
1:09 am
I cant put my hair up in a ponytail. I was wondering If any women could give me some tips on putting my hair up. Thanks Brookw...
2266 Amanda Hall
amanda_lynn_... Send Email
May 24, 2005
5:18 am
Hello Brooke, I've always had to have help with my hair. It is one of my major beefs, but there was one way that I tried to do it myself. It doesn't look...
2267 becky deaver
beck0912 Send Email
May 24, 2005
1:27 pm
Brooke I don't wear my hair that way but for washing it etc. I put my arms up and lean against a wall (in the shower for a shampoo) and I lean and push until...
2268 Brooke
giggles_meus Send Email
May 24, 2005
3:03 pm
Thank you, after i posted i was playing wih my hair and i have these thin stretchy head wraps, it looks like a big ponytail holder, anyway i doubled that then...
2270 TERRY2745@...
terry2745 Send Email
May 29, 2005
6:32 pm
lol ok its been a long week, let me try this again!!! I'll just copy & paste this time lol Theresa! Can cut and post the message below for me. The Yahoo...
2271 TERRY2745@...
terry2745 Send Email
Jun 1, 2005
6:08 pm
ok, I FINALLY have a few minutes to write!!! HA it sure has been a busy year! & I hope everyone is doing well. I thought while I had a 1/2hour or so b4 Im...
2272 Killa Cipher
bootylicious... Send Email
Jun 8, 2005
11:04 pm
Hi my name is jennifer I have arthrogryposis, n my grandmother was givin a medicene called des(diethylstilbestrol) witch causes birth defect, n it not...
2273 Disability With A Smile
arthrogrypos... Send Email
Jun 9, 2005
4:31 am
June 8, 2005 Hi Everyone Through the courtesy of www.CochiseAbility.org we have chat rooms for groups who would like to have their own room. This is very easy...
2274 jrtowner@...
denipatterson Send Email
Jun 9, 2005
1:56 pm
DES has never been proven to cause AMC. AMC is an umbrella name for about 150 types. Arthrogryposis is just a description meaning contractures of multiple...
2275 Kendall Conrad
angelwatt1 Send Email
Jun 10, 2005
1:51 am
No past generations of mine that I know of took des. I didn't get the condition through heredity, though I never had it determined exactly how I came about it,...
2276 Amanda Hall
amanda_lynn_... Send Email
Jun 10, 2005
8:07 am
Hey People, I was wondering if any of you have been to any arthritis clinics? If so, tell me did it help. Can you name some type of doctors that you think will...
2277 daniel Stallsworth
danielson196... Send Email
Jun 10, 2005
11:38 pm
hi yes there is a pill called mobic i take im still learning about it my self i was left in the dark plus im on perkaset now maby a PAIN PUMP MY YAHOO...
2278 jrtowner@...
denipatterson Send Email
Jun 11, 2005
4:13 am
I went to one. It never helped me but then the doctor never heard of AMC. I took a few drugs but have had so many reaction to them it is not funny. I take...
2279 rocks0508 Send Email Jun 16, 2005
6:37 pm
I was wondering if anyone has had problems swallowing. I have always had some problems with big pills and stuff but here lately I have been having problems...
2280 becky deaver
beck0912 Send Email
Jun 16, 2005
8:20 pm
I don't have trouble swallowing per se however I have sleep apnea - where my throat closes up when I'm asleep. I've been to a variety of Drs for this and my...
2281 Patty Clarke
pattio42ca Send Email
Jun 19, 2005
8:01 pm
I too am having more difficulty swallowing as an adult. I used to have trouble chewing certain foods (still do), but just attributed it to lack of jaw...
2282 daniel Stallsworth
danielson196... Send Email
Jun 19, 2005
8:59 pm
I AM 40 N0W HAVING MORE SURGERYS REALLY HURT BAD NOW ALL OVER THROING UP DOES ANY ONE ELS HAVE THIS PROBLEM AND DO I HAVE ANY RIGHT FOR BETER LIVING...
2283 Disability With A Smile
arthrogrypos... Send Email
Jun 19, 2005
9:03 pm
Hi Everyone Besides swallowing problems are you having problems with slobbering? I am and times I find myself slobbering and doing it in public and not sure...
2284 daniel Stallsworth
danielson196... Send Email
Jun 20, 2005
3:33 pm
HI MY NAME IS DANIEL FROM SOUTHERN OREGON I HAVE AMC I HAVE HAD MANY SURGERYS MY HANDS MY WRIST I THINK I LOST PART OF MY COLLEN OVER THIS NOW I...
2285 jtrenblv Send Email Jun 20, 2005
4:32 pm
I live in Las Vegas. The local newspaper (the Las Vegas Review Journal) had an extensive article yesterday on a new and very successful surgery for scoliosis....
2286 Tina Lewis
mommy111603 Send Email
Jun 21, 2005
4:46 pm
When my daughter was born she had problems swallowing too. Partially it was because her muscles weren't developed but her jaw was also too small and required...
2287 Amanda Hall
amanda_lynn_... Send Email
Jun 21, 2005
9:14 pm
Hello Everyone, I was wondering if any of you have Myopathic Arthrogryposis Multiplex Congenita. I've had AMC since birth, but recently found out it was...
2288 Beverly R Hanset Burch
beverlyhanse... Send Email
Jun 21, 2005
9:20 pm
What kind of surgery? At what age? ... From: Tina Lewis To: amc_adults@yahoogroups.com Sent: Tuesday, June 21, 2005 9:45 AM Subject: Re: [Adults AMC]...
2289 janet cresswell
eastwood052003 Send Email
Jun 21, 2005
9:45 pm
What does Myopathic mean? I have AMC in all limbs, hands and feet. Janet UK...
2290 Amanda Hall
amanda_lynn_... Send Email
Jun 21, 2005
10:45 pm
Myopathic changes refer to clinical signs (weakness or the findings of a muscle biopsy) that suggest a muscle disorder, such as muscular dystrophy. ... ...
Messages 2258 - 2290 of 3624   Oldest  |  < Older  |  Newer >  |  Newest
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