Hello It is that time of year for me to wish everyone a Merry Christmas and a Happy New Year. Today I will be celebrating the end of semester here at school...
2126
rnjhamp
Dec 14, 2004 2:23 am
I've taken the cortisone shot for about a year and a half (about every six months) and so far so good. My doctor said the dosage I receive at the rate that I...
2127
Lisa
lysa_j67
Dec 14, 2004 3:29 pm
Hi, I too have many more problems now. My changes began in my mid 20's, & I am 37 now. I used to be able to walk with full-length leg braces. However, my...
2128
Tammy
wheeliemama2003
Dec 14, 2004 7:55 pm
HI EVERYONE, IM 35 YEARS OLD AND I HAVENT LOST ANY MOVEMENT IN MY BODY AT ALL BUT I DO HAVE MORE PAIN HERE AND THERE DEPENDS ON HOW ACTIVE I AM THAT DAY I WALK...
2129
Amanda Hall
amanda_lynn_...
Dec 15, 2004 12:37 am
Hi there, My pain didn't really start as bad till I started in my mid 20's. There are many attributes that follow with my amc. It has affected my muscles and...
2130
cavy2fast4u
Dec 26, 2004 2:06 pm
my daughter is 8 months old and has arthrogryposis and club feet. if any could give me any info on how to help her it would be very much appreciated. thanks, ...
2131
JRTowner@...
denipatterson
Dec 27, 2004 4:13 am
Is her AMC mainly in the legs and hips? What are you doing for her? Are you splinting? ROM exercises? Any physical therapy. I'm an Oldie so in my day ...
2132
Brandon Cleary
cavy2fast4u
Dec 30, 2004 5:47 pm
hi, i really appreciate the reply. my daughter has problems with her arms, hands, hips, and legs. she was also born with club feet. the docs have been casting...
2133
Jason Hughes
hiwsnpt
Jan 1, 2005 9:12 pm
Hi Brandon, Had similar problems myself many years ago. I am now 36. What helped the most was swimming from an early age. I had very limited movement at 8...
2134
reluctantoperachick
reluctantope...
Jan 9, 2005 3:51 am
Hi - I am Owen1013's wife; I don't believe I've posted here before. I know some of you are parents. A friend asked me if we had any suggestions/information on...
2135
~*~Casey~*~
texascowgirl...
Jan 9, 2005 4:05 am
Hi there, I know I very seldom post to the group but here is a website that might be of some assistance. http://www.disabledparents.net/ They offer adaptable...
2136
Brooke
giggles_meus
Jan 9, 2005 7:16 pm
I have created a group for disabled people who want to lose weight. If your interested heres the link ...
2137
TERRY2745@...
terry2745
Jan 13, 2005 1:48 pm
Hi! Has anyone with AMC tried massage therapy? Last spring I started going & it has helped me BIGTIME! I go every 2 weeks. I mainly started because of my ...
2138
Karen
littlenursek...
Jan 14, 2005 3:14 am
Hi Theresa and everyone, I get massage therapy for one hour once or twice a month (which isn't exactly enough) and I find it very beneficial. It helps to ...
2139
TERRY2745@...
terry2745
Jan 20, 2005 11:29 pm
Ok I had to write & tell you all this! I found out today I have lied to you all! I told you I had never met anyone with AMC before I joined this...
2140
eastwood052003
Jan 21, 2005 5:42 pm
Does anyone know Felecia Buchannon? I have tried emailing her but they bounce. Also Veronica Barrett. Please let me know. from Janet Cresswell UK...
2141
TERRY2745@...
terry2745
Jan 27, 2005 2:11 pm
Anybody can do anything that he imagines. ~ Henry Ford People treat us the way we teach them to treat us. ~Wayne Dyer Make the best of this test and don't...
2142
stephenvu@...
stephenvu1998
Jan 27, 2005 7:21 pm
Hello everyone! I'm not a frequent writer, but had a question. I'm 29 years old, and have not seen an ortho specialists since I "graduated" from AI DuPont in...
2143
wynlady
Jan 27, 2005 10:39 pm
You all are fantastic... Did any of you start out with SMA as children and who among you has had amputations?...
2144
Jesse Monroe
work802003
Jan 28, 2005 2:27 pm
what is SMA? ... ===== signature test'; "> __________________________________ Do you Yahoo!? Yahoo! Mail - Find what you need with new enhanced search. ...
2145
kristin@...
wynlady
Jan 28, 2005 4:54 pm
Spinal muscular atrophy: http://www.emedicine.com/neuro/topic631.htm http://accessible.ninds.nih.gov/disorders/sma/sma.htm Congenital SMA with arthrogryposis...
2146
Kendall Conrad
angelwatt1
Jan 28, 2005 7:20 pm
Hi everyone, the name is Kendall and I'm 23 and have AMC. From what I've learned of AMC I was lucky that I was only effected from the sholders to my hands in...
2147
Jen Sylvester
jen11582
Jan 28, 2005 9:46 pm
Hi Kendal, My name is Jen and I am also 23 with arthrogryposis. I would love to talk to you sometime. Like you I have adapted to life pretty well. You have...
2148
rnjhamp
Jan 28, 2005 10:33 pm
Hi Kendall. My name is Jen and I have AMC also. I am 31 and married. I have a mild case of AMC and have adapted well to it thu- out the years. We are a...
2149
Betty Hicks
missbetty38
Jan 29, 2005 12:42 am
Man that describes me exactly, got major contractures, had chest deformality (sp?), scoliosis, and a small mouth. And the droopy eyelids. Never heard of SMA...
2150
rocks0508
Jan 29, 2005 4:10 am
I am looking for someone with the same degree of severity as me so I am going to tell you my complications and hope that someone has the same or knows someone...
2151
Jason Hughes
hiwsnpt
Jan 29, 2005 10:48 am
Hi Kendall, Same here mate. I'm 36 now but same symptoms as yourself. Mainly elbow probs in both arms. Living normal life though (I think!!),in Wales U.K. The...
2152
Danie Weber
uuuneeek1
Jan 29, 2005 4:34 pm
It seems so strange...At the age of 47, I am still learning about AMC! I too, have never heard of SMA before now. I am not certain to the degree of my...
2153
kristin@...
wynlady
Jan 29, 2005 6:01 pm
Thanks Betty. I don't have AMC or SMA but I have a friend who does. This thing is so rare and the medical info out there is at best difficult to sort through....
2154
Brooke
giggles_meus
Jan 29, 2005 8:39 pm
I made a group only for weomen. This group is for disabled women to share advice,support and to make friendships. if intrested hers the link...
