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amc_adults · Adults With AMC (Arthrogryposis)
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Messages 1941 - 1971 of 3179   Oldest  |  < Older  |  Newer >  |  Newest
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1941
Jaime and Darrin: How contracted are Dylan's legs? Can you see if he can bear a little weight on them if he's semi-sitting/leaning back against the toilet w/ ...
TEAM PONDER
codysmomkell...
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Apr 4, 2004
1:59 pm
1942
Hi Guys, My doc is recommending that I go to a Pain Management Center because he says that he can not control my pain anymore - which is true. However, I have...
Lisa Johns
paintinglisa
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Apr 5, 2004
2:11 pm
1943
... I've never been to one, but I've known people that have. The things that help (temporarily) are the drugs you get, which are mostly local anesthetic ...
Jonathan Lane
jingai0
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Apr 5, 2004
2:32 pm
1944
My developmentally disabled friend went to one and they helped some. I was not too happy to see the drugs they were giving her, like Oxycontin. I'm not sure...
JRTowner@...
Send Email
Apr 5, 2004
5:52 pm
1945
... From: Lisa Johns To: amc_adults@yahoogroups.com Sent: Sunday, April 04, 2004 10:56 PM Subject: [Adults AMC] I need to know if any of you, or... Hi Guys, My...
Helyn Strom-Henricksen
helyn157
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Apr 6, 2004
12:19 am
1946
My son, Azrul is 5 years old and has been diagonizes with AMC since birth. He underwent one major operation to correct his clubfoot and knees. But until now he...
azah mohamad
azahmj
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Apr 6, 2004
2:48 pm
1947
Hi Everyone I was on the phone last night chatting with a friend of mine that was born with no arms and flipper like feet. He gave me permission to tell you...
Georgia
arthrogrypos...
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Apr 6, 2004
10:15 pm
1948
hi i just did a wheelchair search on e-bay and came up with a few on there that are on the cheaper side. so you may want to try looking there. its www.ebay.com...
Allyson
allycat70001
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Apr 8, 2004
2:44 am
1949
Thank you Denise. The more I hear, and the research I have been doing on these Center's - the more skeptible I am becoming. One site that I visited said that...
Lisa Johns
paintinglisa
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Apr 8, 2004
4:54 am
1950
Hello, I am very sorry but I do not have a child-size wheelchair. However, Your son sounds a lot like me at that age. I had the surgery to straighten my...
Lisa Johns
paintinglisa
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Apr 8, 2004
7:44 am
1951
Helyn, Thank you for letting me know this. I am 37 yrs old, and have been treated like a guinea pig for most of these yrs, and I do not think my body can stand...
Lisa Johns
paintinglisa
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Apr 8, 2004
9:06 am
1952
Lisa Johns <paintinglisa@...> wrote: Hello, I am very sorry but I do not have a child-size wheelchair. However, Your son sounds a lot like me at that...
azah mohamad
azahmj
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Apr 9, 2004
12:10 pm
1953
Hello Azah, I hope you and your family are doing well. As for my learning to walk, basically it just took a lot of practice and time. After my Mother helped me...
Lisa Johns
paintinglisa
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Apr 11, 2004
7:55 am
1954
4/11/2004 HI EVERYONE.... I HAVE SOME AWESOME NEWS FOR YOU.... I AM GETTING MARRIED!!!!!!!!!!!! (now i know some of you won't be able to come... but we are...
Tracy
giggles4joy29
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Apr 12, 2004
10:02 am
1955
Congrats!! That is so wonderful. I hope you and your future spouse have a lifetime of love and friendship. Jen H....
rnjhamp
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Apr 12, 2004
3:42 pm
1956
Hi all, Just wanted to let you all know about my exciting news, and I mean exciting. I found out today that I do not have Cancer....
Betty Hicks
missbetty38
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Apr 12, 2004
10:26 pm
1957
Hi Tracy, This is exciting news. I just want to say congratulations & I wish you & your fiance much happiness. Take Care, Lisa Tracy...
Lisa Johns
paintinglisa
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Apr 13, 2004
6:14 am
1958
Hi Betty, I am soooo happy to hear that it was not cancer. I know you have to be so relieved, but now you can stop worrying about it. Take care of yourself, &...
Lisa Johns
paintinglisa
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Apr 13, 2004
6:27 am
1959
hI Lisa I am too glad to hear that ur not with cancer bloody. Pray to God. I cannot hide my happiness. Its a positive sign for u L. Please send me urs Snaps...
dddd ddd
saba33333
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Apr 13, 2004
12:56 pm
1960
ooooo thats AWESOME news Betty!!!!!!!! ~Theresa [Non-text portions of this message have been removed]...
TERRY2745@...
terry2745
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Apr 13, 2004
1:04 pm
1961
That is awesome news. I had a similar scare like that in January after a routine check-up. I was sent to a hematologist only to discover my abnormal blood...
rnjhamp
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Apr 13, 2004
8:13 pm
1962
You don't get to choose how you're going to die. Or when. You can only decide how your going to live now.  -- Joan Baez "I've seen what a good laugh can do....
TERRY2745@...
terry2745
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Apr 16, 2004
1:37 pm
1964
Hi Everyone, With all the e-mails lately about hospital memories, I thought this might interest some of you. NEWS RELEASE ... for Former Patients ... looking...
Bonnie Kaplan
bifocalbonnie
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Apr 19, 2004
5:58 pm
1965
Please go to this site and click on the first story " "3-year-old Evan Scott" http://www.hearmyvoice.org . I've known Dawn for almost 3 years and she and I...
The Johnsons
johnslg311
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Apr 29, 2004
4:15 am
1966
Hello Everyone I hope someone can help me with some important information. A friend of mine is expecting twins. One of the babies might have Arthrogryposis...
Georgia
arthrogrypos...
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Apr 29, 2004
5:25 pm
1967
I have only taken my son to seattle but from what i hear on here it seems that both are great resources for children with amc. I belive it all depends on what...
tucmum@...
tracinag
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Apr 30, 2004
2:44 am
1968
Hi, I grew up with AMC at the Childrens hospital in Seattle, the last time I was there I was 19. that was 28 years ago, but I still know some of the Dr's there...
David
Adiohound
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May 3, 2004
3:41 am
1969
Hi Dave I am at the college right now finishing up some end of the semester reports. Saw your email pop up and thought I would say thank you for answering me....
Georgia
arthrogrypos...
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May 3, 2004
4:03 am
1970
Hi everyone, I just wanted to let you all know that I became an Aunt yesterday!!!! My sister in-law had a baby girl and named her Ariana Marie Treger. She was...
Ilyce
pinkphoenix2...
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May 6, 2004
3:58 pm
1971
To:Advocates_For_People_With_Diffabilities@...:"Londa" <londa.mccullough@...>Date:Thu, 6 May 2004 09:09:08 -0400 Subject:AFPWD Fw:...
Georgia
arthrogrypos...
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May 7, 2004
5:05 pm
Messages 1941 - 1971 of 3179   Oldest  |  < Older  |  Newer >  |  Newest
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