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amc_adults · Adults With AMC (Arthrogryposis)

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  • Members: 297
  • Category: Disabilities
  • Founded: Jul 4, 2001
  • Language: English
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1 Dan
dan@... Send Email
Jul 5, 2001
5:18 am
Hi all, Thanks for joining this list. As I'm sure you all know by now, I was banned from Christopher Johnson's list, so that is why this list was created....
2 TERRY2745@... Send Email Jul 5, 2001
1:21 pm
lol thanks Dan!!!!!! I like the cool star by my name!!!!!!! :) ~Theresa...
3 avrieldawn@... Send Email Jul 5, 2001
8:21 pm
I never paid all that much attention to the other list anyway....lol...
4 oz0matli14@... Send Email Jul 5, 2001
9:29 pm
hello everyone, i was on the avenues until dango got banned, so i sent in a request to be removed from that so-called mailing list...if u were on the avenues...
5 beck@... Send Email Jul 5, 2001
11:31 pm
I've posted elsewhere in reply to Bill about shoes and feet problems and was wondering if anyone on this list also had problems with shoes. Mine all began...
6 Betty Hicks
misbetty@... Send Email
Jul 6, 2001
12:12 am
Most of you all ready know me, but I'll just say a few things about myself. My name is Betty Hicks and I'm from Wisconsin, I have been on both lists and I had...
7 beck@... Send Email Jul 6, 2001
12:54 am
My hands don't generally shake - except when I'm scared I guess :) but not in the way you mean. Sometimes when I'm tired my insides feel like jello - not...
8 SocialGirl836@... Send Email Jul 6, 2001
2:02 pm
I never read all the messages on the other list either. Alina [Non-text portions of this message have been removed]...
9 Dan
dan@... Send Email
Jul 6, 2001
6:50 pm
Betty, Thanks for joining. I always wondered why you and Owen had lost your co-moderator status on that other list. I guess it was never brought up in...
10 neuromancer24@... Send Email Jul 6, 2001
7:22 pm
I received your e-mail about being banned from another group. I went back and caught up, I haven't visited in awhile. Boy, emotions sure flew. I am not sure...
11 beck@... Send Email Jul 6, 2001
8:17 pm
Jen you mentioned in a different post about your ankles: My so-called ankles swell when I am on my feet a lot. My doctor has suggested elevating and icing my...
12 neuromancer24@... Send Email Jul 6, 2001
9:34 pm
The swelling has occurred for the past 4 1/2 years. The doctors says its due to arthritis and being on my feet a lot. I work as an instructional aide in the...
13 avrieldawn@... Send Email Jul 6, 2001
10:47 pm
my hands don't shake ... but my finger tend to lock in place or move on their own repeatedly. My toes tend to do the same thing. I think it's related to ...
14 neuromancer24@... Send Email Jul 6, 2001
11:49 pm
... move on their ... related to ... different ... haven't ... My hands "lock up" I went to therapy for a few monthes for it. I was dignosed with Carpal...
15 beck@... Send Email Jul 6, 2001
11:52 pm
My swelling shows up at night. I do think if I am not on my feet it is less. I work in a library and my (so called) office is up a double staircase (no...
16 neuromancer24@... Send Email Jul 7, 2001
2:04 am
Because of the disputes lately I was jsut wondering... is anyone still planning to attend the picnic in Arlington July 14? My family was really looking...
17 pooky1380@... Send Email Jul 7, 2001
4:12 am
my right ankle or what's left of it does that alot lately also.. most of me problems are one the right side the hip has been replaced the knee was fused...
18 TERRY2745@... Send Email Jul 7, 2001
3:55 pm
hi! Im 35 (omy almost 36) with amc & i have had swelling in feet & ankles 4 a few years now. & the dr did say it IS arthritis. It seems i will ache no matter...
19 Madonna Kelly
mmk2001@... Send Email
Jul 8, 2001
2:08 pm
hi not sure how this works but if anyone wishes to e mail me please do so _________________________________________________________________________ Get Your...
20 rnjhamp@... Send Email Jul 8, 2001
11:03 pm
I have changed IDs so don't be alarmed. I'm the person who brought up the arthritis and feet swelling. Hope everyone had a great weekend! Jen...
21 Jenny sfgjkl,kjh
lil_miss_speedie@... Send Email
Jul 8, 2001
11:19 pm
hey there, my fingers lock in place too, mostly my middle finger and it hurts when i straighten it, i usually have to force it to straighten. cheers Speedie...
22 rnjhamp@... Send Email Jul 8, 2001
11:22 pm
Is anyone wearing splints? Or doing therapy? As I mentioned once before I had therapy for a few months for my hands. My hands still freeze up at times but...
23 jerisayer@... Send Email Jul 9, 2001
1:29 am
I am a not a computer expert!! I want to be on this mailing list, however, the only way I can seem to sign up is with this yahoo.com adddress...since I only...
24 JRTowner@... Send Email Jul 10, 2001
1:51 am
You have to register on yahoo when it ask for your email address enter the AOL address. Then you send you email to the group at "amc_adults@yahoogroups.com"...
25 chami98@... Send Email Jul 10, 2001
8:47 am
Hello all, My name is Christina, I'm 21, and I have AMC. Hehe it sounds like I'm in AA or something. Sorry if that came out sounding bad, I guess its just my...
26 beck@... Send Email Jul 10, 2001
1:51 pm
Hi Christina Thanks for the feed back. I have never heard of doctors doing anything with people other than kids. As a matter of fact, that seems to be a...
27 chami98@... Send Email Jul 11, 2001
5:15 am
Thanks for the welcome.. I'll keep you posted on anything I learn. :o) ~~Christina [Non-text portions of this message have been removed]...
28 chami98@... Send Email Jul 12, 2001
3:57 am
Becky you mentioned your custom made shoes and I wondered how much they cost if your ok with sharing. Mine cost anywhere from $500 to $800 a pair. I'm just a...
29 beck@... Send Email Jul 12, 2001
8:42 pm
Christina - mine will be $300.00. I went today to pick them up but the Dr. didn't like the way they were done - rocker sole wasn't right he said. Didn't feel...
30 Betty Hicks
misbetty@... Send Email
Jul 14, 2001
12:24 am
Just to let you guys know I'll be gone for a week so you won't see any posts from me unless something really good happens. Be back probably next Saturday. Have...
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