I dont know if anyone here remembers me or not. I have a daughter born at 32 weeks with a trach and g-tube. She also suffers from hypotonia (low muscle tone)...
... anyone :( Oh well we weill try again. We had another swallow study yesterday, the 24th-and good news, skyler passed with flying colors. We now have the OK...
... 100s ... that ... I ... work ... advice ... Hi Rafeah, well my little boy's co2 level changed and increased when they were trying to make changes to his...
Here is a wonderful poem that one of the moms from the Pierre Robin Group sent out again today, its soo true, even after 2 years and thousands of times of...
HI CAsie, That was one of the most beautiful things I have ever read. It is so true how every word almost toughed me and my life with gRACIE IN ONLY 2 YEARS....
Tricia, wow skyler and gracie are close in age? he was two in august. she also had a cleft palate? so did skyler :) what is oral teretoma and auditory...
HI Gracie had a oral teratoma discovered in utero.It was a serious tumor very rare that blocked her oral cavity and her airway. The tumor filled her mouth not...
Hello my name is Taunya Bryant, I had a son back in April who was born with a rare brain disorder called Holoprosencephaly. Its when your brain doesn't...
My son is 7 monthes old with a trach. He during the past few months has started to make noise without the passy-muir. Is that normal? He seem to more and...
Sarah, Hey that sounds good to me :) we were excited when skyler began the jibbering...unfortunatly it doesnt stop, take care :) Casie mom to Skyler 2, PRS SS...
hello lizzy, this latasha and my little girl has a trach also. its been close to a year since she has had her trach. and she also made sounds before the passy...
Hope to get to know you all. I will try to contribute to the discussion with my thoughts, knowledge, and opinions....
darlene.bailey9644@...
Oct 10, 2004 8:27 am
790
Hi, I wrote several months back but then got busy going back and forth to the hospital and haven't posted in a while. I am in the process of adopting a little...
Hi there, My daughter Heather had a 4.0 Neo Shiley, and is vent dependent, and never quite figured out how to use the Passy. She has had hers since February ...
Hi Lizzy, My son Joell was trached since 2 weeks old til he was 14 months old. Actually the pass-mauir only made his sounds louder. He made sounds with out...
Hi Lynne, Thanks for the encouragement and yes, it does help. Yes Jordan was out of Egleston. He is 14mo. now so maybe we will just wait patiently and see if...
Laurie, I hope you get what you need with Dr Cotton. We also traveled to Cincinnati to see him. It was so nice having all the doctors on the same team....
Hi everyone, just though I would introduce myself. I'm looking forward to the discussions here. Oh yeah, my pics are at:...
darlene.bailey9644@...
Oct 12, 2004 10:50 pm
796
It's nice to be here and I look forward to getting to know all of you better. If you want to see my pic go to: http://www.orgyindex.com/bubiboo/...
darlene.bailey9644@...
Oct 14, 2004 8:10 am
797
Hello, I haven't wrote in awhile either, but i've experienced some simulateries my son Jaylen is now 4 and he got his trache taken out about a year ago. We...
Are people getting screened here? Is this for real? I dont want spam in the groups too!! Is there something we can do? Just wondering . Casie mom to skyler...
Dear Group, I have received several private emails about this issue. I just want to clarify that tracheostomy_infants is not part of Aaron's Tracheostomy Page...
Hi, I joined this group some time back but have not been on-line for a long time. Our daughter Lucy is 2 and has a tracheostomy. She also is tube fed,...
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darlene.bailey9644@...
Oct 22, 2004 6:17 am
804
Hey guys! I don't want to be a nuisance, but I have to tell you that I finally got my webcam repaired! So now I am on full view again like usually! Also the...
TureAngel
darlene.bailey9644@...
Oct 24, 2004 4:06 am
805
Gee, who does own this listserv??? This problem needs to be resolved... Sincerely, Cynthia Bissell Aaron's Tracheostomy Page www.tracheostomy.com _____ From:...
