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Tracheostomy_infants · This list is for parents for babies/infants with tracheostomies. It offers support and information about daily trach upkeep and
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550
Hi All, I wanted to let you all know that I am in the process of moving Aaron Tracheostomy Page and it's message boards to a new server. We have out-grown our...
Cynthia Bissell
cindybissell
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Jun 1, 2003
12:14 pm
551
Hi All, I was just sent a copy of an adorable new Children's Book about a child who has a tracheostomy. The book is written by the boy's grandmother. Here is...
Cynthia Bissell
cindybissell
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Jul 15, 2003
11:22 am
552
Hi there Cynthia, this book looks really great! Everything ok over with you guys? We're fine, just stuck in the last few weeks before we get the german site...
Anri Schramm [Stiftun...
stiftungnoah
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Jul 15, 2003
11:48 am
553
Thought you would all be interested to know that I've just added the 300th child to the "Kids with Tracheostomies" section of Aaron's Tracheostomy Page! WOW,...
Cynthia Bissell
cindybissell
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Jul 26, 2003
8:00 pm
554
... From: Lisa Y. Torres [mailto:info@...] Sent: Tuesday, November 04, 2003 4:12 PM To: 'TRACHTIES@...' Cc:...
Cynthia Bissell
cindybissell
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Nov 5, 2003
11:47 am
555
Hi everyone, i am new here and my lil Matthew just got his trach last month and hes not home yet, we are trying to get some nursing help and i was wondering...
matthewsmomof2
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Nov 12, 2003
6:16 am
556
... My son is 11 years old now and we have never had nursing. My son is very fragile and has multisystem needs though...we have been preserving his insurance....
Cottontender@...
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Nov 12, 2003
9:32 am
557
Hi matthewsmomof2 My son is two and a half and he has had his trach since he was two months old. When he first came out of the hospital we had no nursing....
BRINA CLAUDE
jac0614
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Nov 12, 2003
11:48 am
558
In the US, the average amount of nursing hours for a baby with a trach (no ventilator) is 8 hours per day (56 hours per week). Sometimes you can get more when...
Cynthia Bissell
cindybissell
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Nov 12, 2003
1:28 pm
559
We get 112 hours a week with 365 hours of repite care per year. Where we live Peoria, IL our baby's physician demands it or will rehospitalize him. We have...
Angie
choirn2
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Nov 12, 2003
5:59 pm
560
Hollie, I saw your post, and I also have a seven month old son, Sam, who has a trach due to airway issues. (He kept blocking his airway with his tongue.) He...
Steve and Leslie Harley
les5271970
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Nov 12, 2003
9:41 pm
561
Hi~ Depending on what part of the country you live in....please check with the social care set up at your hospital to check on nursing. Jordan had care for...
helhou@...
auntie_joujou
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Nov 13, 2003
8:41 am
562
hello thank-you for writng me . i finally saw the hole where they put the trach in for the frist time today when i was heping to change the trach. i was very...
latasha davis
latashaclay8974
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Nov 13, 2003
8:07 pm
563
hello thank-you for writing me i not at home just yet with my lillte spirit. but she will be home soon. Steve and Leslie Harley <sharley72@...>...
latasha davis
latashaclay8974
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Nov 13, 2003
8:14 pm
564
There is a wonderful online group for parents with children with feeding tubes. It is at http://health.groups.yahoo.com/group/feeding_g-tubes/ I am also a...
T. Vogel
snowangel12_25
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Nov 13, 2003
8:19 pm
565
... My son doesn't have a feeding tube, but he does have a pacemaker and VP shunt. Cotton...
Cottontender@...
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Nov 14, 2003
10:34 am
566
My grandson is finally home, except for his hospital stays, but his parents get nursing care from approximately 8pm until 8am 7 days a week. Mom was able to...
Brenda
brendaroten
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Nov 15, 2003
9:24 pm
567
Hello im new here i have a 6 and half month old son who have been in the hospital since birth he was born 23 weeks pre term he will be coming home soon he has...
Sweet Brown Suga !!!!...
peachyyy4eva
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Nov 17, 2003
4:26 am
568
Yes i forgot and he has a feeding tube.Does any one else have this for thier infant as well...
Sweetness
peachyyy4eva
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Nov 17, 2003
4:55 am
569
well mine is not an infant anymore... but he was a preemie and came home with a trach and g-tube. We learned all his care before we left the hospital and ...
SommerHN1@...
sommerhn1
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Nov 17, 2003
2:33 pm
570
does anyone knows if a child with a trach qualify for ssi...
Sweetness
peachyyy4eva
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Nov 20, 2003
12:11 am
571
Yes most children with trach's qualify for ssi it is up to the physician to fill out the paperwork. Just get the paperwork from your local office and give it...
Angie
choirn2
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Nov 20, 2003
1:28 am
572
hello everyone i am a mother of a beauiful little and she just got a trach i would say about 3 weeks ago. what i wanted to know is is it very hard to take...
latasha davis
latashaclay8974
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Nov 20, 2003
2:14 am
573
hello my name is latasha and i have a little name spirit jade. she has been in the NICU since birth and never been home she is now 3 months old and i just...
latasha davis
latashaclay8974
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Nov 20, 2003
2:35 am
574
Hi, my name is donna jackson and i have a granddaughter who is now 2 yrs old and has been trached since she was first born on 07/26/01. I would love to chat...
donnajackson09
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Nov 20, 2003
3:35 am
575
Hi, I am new to this group but my son has a trach and he gets ssi but there is also a income limit I thank he also gets medicad. Thanks- Dorothy...
ddj0621@...
ddj0621
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Nov 20, 2003
4:11 am
576
Hi, my son has PRS and is 7 months old and has a trach. Dorothy...
ddj0621@...
ddj0621
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Nov 20, 2003
4:13 am
577
Should first check with your local SS office to see if your family fits the income guidelines. (This does not matter is the child is currently in the ...
Cynthia Bissell
cindybissell
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Nov 20, 2003
8:09 pm
578
A trach can help a child to qualify for SSI, but they will look at parent income as well. In my experience in Pennsylvania, we had to apply for SSI for our...
Lauren Nese
laurennese
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Nov 20, 2003
8:42 pm
579
I am new to the group. I have a 3 1/2 month old daughter who has a trach. She has Arthrogryposis, which is a disorder that affects the joints. I am just hoping...
butterflyprincess918
butterflypri...
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Nov 21, 2003
3:12 am
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