We just brought our second twin home with a tracheostomy that we had not planned for. We feel like we were sort of hung out to dry once we got home. Our...
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sammystreetuk@...
sammystreetuk
Apr 4, 2003 4:31 pm
I'm sorry I have no words of wisdom for you, but am sending you a huge hug. I'm in the UK and as I have said many times before we are very lucky to have a...
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cbissell
cindybissell
Apr 16, 2003 5:02 pm
532
keita
pure_eleganc...
Apr 21, 2003 2:33 am
I just found out my daughter has to have a trach and would like to hear from some of you that are dealing with the same thing so that I can get some idea of...
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Anri Schramm [Stiftun...
stiftungnoah
Apr 21, 2003 2:58 pm
keita wrote: Hi there I had two boys, who both had trachs as well as feeding tubes. They both suffered from a degenerative neurological disorder and are both...
534
sammystreetuk@...
sammystreetuk
Apr 21, 2003 3:09 pm
Hi, I know this is a scary time, but at least you have time to time to get some infomation so you can be a little prepared. Have you checked out ...
535
John Detoro
karend12601
Apr 21, 2003 3:35 pm
Keita, It must have been difficult to find out that you daughter needs a trach. My son, who is now nine months old has a trach. He has tracheal malacia since...
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BRINA CLAUDE
jac0614
Apr 21, 2003 10:31 pm
Hi Keita, My son had subglottic stenosis, and they had to trach him at the age of two months. He just recently received a g-tube. When the hosptial told me he...
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keita
pure_eleganc...
Apr 22, 2003 12:14 am
She is Three months old and we have been trying to get her off of the ventilator but whenever she is taken off she dosen't do well so the doctors say they...
538
Sortiz5@...
Apr 22, 2003 4:29 am
My son Nicholas was trached at 10 weeks old due to subglottic stenosis and was just decannulated at 3 years old. We have been through so much throughout three...
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horizonssne
Apr 23, 2003 3:39 pm
... like to ... so that I ... appreciate ... Our daughter was trached about 6 weeks ago after trying a lip/tongue adhesion surgery that did not help to keep...
540
SommerHN1@...
sommerhn1
Apr 23, 2003 6:22 pm
I have a 3 year old with a trach. June 1 will be his 3 year anniversary with a trach. What kinds of questions do you have? It is very overwhelming at first...
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NPonte
Apr 24, 2003 4:42 am
Hi, my name is Norleen, on February 7, 2003 my daughter Madison was born. Maddie was born with a very large VSD (murmur/heart) esophagilatrigia/t-fistula,...
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Ben Jackson
benfjackson2002
Apr 26, 2003 12:03 pm
Hi Norleen - My daughter went through a similar experience shortly after getting her trach. We started giving her chest PT several times a day, and many of...
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NPonte
May 4, 2003 4:03 am
Ben, One more thing, you state the fundoplication truly made a difference, do you recall what weight Emma was when they performed this? They have continuously...
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odesa4355@...
odesa4355
May 11, 2003 3:04 am
How old is your daughter? Do you have specific questions? My daughter got her trach when she was 3 weeks old. She is now 6 months! Let me know. I would love to...
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Norleen Ponte
NPonte
May 14, 2003 3:14 am
Hi, Madison received her trachea 12 hours after she was born ( 2/07/03). We have actually been experiencing blue spells w/ her, due to granulation tissue. The...
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brendaroten
May 20, 2003 1:15 pm
My grandson was born on April 17, 2003. Before birth we found out that he had Spina Bifida and were prepared for that, but when he was born he had a stroke....
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Anri Schramm [Stiftun...
stiftungnoah
May 20, 2003 2:16 pm
Hello Brenda So sorry to hear that your grandson is so sick. Both my boys had trach for neurological reasons as well as trachs. Having a tarch is not too bad...
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Brian & Melinda King
andlimegink
May 21, 2003 2:20 am
Brenda, I live in NC. My son has been trached since he was 2 1/2 weeks old. He's now nearly two. I would be happy to talk with you rather than write. Are...
549
SommerHN1@...
sommerhn1
May 23, 2003 10:35 pm
Brenda, I didnt see a reply to your post so I will give it a try.... My son had a trach and g-button placed 6-1-00. He was in the NICU and too could not be ...
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Cynthia Bissell
cindybissell
Jun 1, 2003 12:14 pm
Hi All, I wanted to let you all know that I am in the process of moving Aaron Tracheostomy Page and it's message boards to a new server. We have out-grown our...
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Cynthia Bissell
cindybissell
Jul 15, 2003 11:22 am
Hi All, I was just sent a copy of an adorable new Children's Book about a child who has a tracheostomy. The book is written by the boy's grandmother. Here is...
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Anri Schramm [Stiftun...
stiftungnoah
Jul 15, 2003 11:48 am
Hi there Cynthia, this book looks really great! Everything ok over with you guys? We're fine, just stuck in the last few weeks before we get the german site...
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Cynthia Bissell
cindybissell
Jul 26, 2003 8:00 pm
Thought you would all be interested to know that I've just added the 300th child to the "Kids with Tracheostomies"; section of Aaron's Tracheostomy Page! WOW,...
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Cynthia Bissell
cindybissell
Nov 5, 2003 11:47 am
... From: Lisa Y. Torres [mailto:info@...] Sent: Tuesday, November 04, 2003 4:12 PM To: 'TRACHTIES@...' Cc:...
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matthewsmomof2
Nov 12, 2003 6:16 am
Hi everyone, i am new here and my lil Matthew just got his trach last month and hes not home yet, we are trying to get some nursing help and i was wondering...
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Cottontender@...
Nov 12, 2003 9:32 am
... My son is 11 years old now and we have never had nursing. My son is very fragile and has multisystem needs though...we have been preserving his insurance....
557
BRINA CLAUDE
jac0614
Nov 12, 2003 11:48 am
Hi matthewsmomof2 My son is two and a half and he has had his trach since he was two months old. When he first came out of the hospital we had no nursing....
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Cynthia Bissell
cindybissell
Nov 12, 2003 1:28 pm
In the US, the average amount of nursing hours for a baby with a trach (no ventilator) is 8 hours per day (56 hours per week). Sometimes you can get more when...
