Hi Charlotte, I poke my head in and read this board every once in awhile so I am late in replying, sorry. My son is 13 months Trach, G-tube, and Goldenhar. I...
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Cynthia Bissell
cmbissell@...
May 11, 2001 8:35 pm
Greetings, To all those families who completed the final version of the Pediatric Tracheostomy Quality of Life Questionnaire, I offer you a tremendous thanks. ...
283
Anna T.
Nanamommy@...
May 15, 2001 2:56 am
Has anyone else had a vent-dependent child who has eventually been weaned? Last Wed. we were at the hospital. Sunshine was left in the care center with the...
284
Cynthia Bissell
cmbissell@...
May 17, 2001 3:22 pm
Hi All, I wanted to let you all know that Aaron's Tracheostomy Page has move to it's own domain. The new, permanent address for Aaron's Page is: ...
285
haileymyangel@...
May 24, 2001 4:31 pm
My name is christi. My daughter had a tracheostomy proformed almost 3 months ago. Things are going ok, I care for her all day and Hailey's dad helps on days...
286
natrdr@...
May 25, 2001 9:50 am
... Hi, Christi Congratulations on surviving all this so far! It's a lot to handle. Is your daughter getting used to the trache yet? Is it getting any...
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Cynthia Bissell
cmbissell@...
May 26, 2001 3:04 pm
Hi All, Thank you to those of you who filled out the Pediatric Voice Outcome Survey. Your input is very much appreciated. We still need approximately 40 more ...
288
haileymyangel@...
May 26, 2001 5:18 pm
-- ... who has been going through the same thing. Hailey is getting used to the trache, however her cleanings are getting more challenging each day! She tends...
289
Sortiz5@...
May 28, 2001 8:22 pm
My son Nicholas is 19 months old and has a trach since he was 10 weeks old. I know how difficult to adjust to all the changes. I hope you are all doing well....
290
natrdr@...
May 30, 2001 8:08 am
... Hi, Christie Can you find a way for Hailey to help with the cleanings in some way, like helping get supplies together and helping hold things ready? The...
291
Billy Nagey
ssb_bjgn@...
Jun 4, 2001 12:32 am
Hello, Mallory had a trach at 9 months for the same reason. There are lots of details. She is almost 2 and going to a daycare 3 days a week that cares for...
292
andrea warschun
rewar2001@...
Jun 5, 2001 9:33 am
Hi all, I`m new to this list, my name is Andrea and I have a daughter, Sofėa, 4 1/2 years, who had her trach last month due to an acquired subglottic...
293
Tammy Stanisz
stanisz@...
Jun 5, 2001 9:43 am
It's been a while since I last wrote to the group. Welcome to everyone who has joined the last few months. Lauren (24 week gestation twin, only survivor) was...
294
flor tiran
vettesky228@...
Jun 6, 2001 5:21 pm
... Good ... intubated for 21/2 mo.which caused subglottic > stenosis ( 80% obstruction at the time he got his > trach. He is now 15 mo.old/18 lbs. and will be...
295
bc3bandy@...
Jun 10, 2001 5:29 am
Hello everyone My name is Christine and I have three lovely children. The first two are as normal as a 9 & a 2 year old could be. My youngest was born 15...
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natrdr@...
Jun 18, 2001 10:23 am
... ssb_bjgn@... How are you and Mallory doing? What kind of trache does she have? How mobile is she? Does she leave her trache tube alone, or does she...
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christine LOMBARDI
haileymyangel@...
Jun 23, 2001 7:59 pm
my daughter hailey is now 18 months and has had a trach for 4 months now. She is doing great but I am having a hard time with daily cleanings and trach ...
298
Anna T.
Nanamommy@...
Jun 24, 2001 9:08 pm
No suggestions, but you're not alone! I do have nursing care, and I still find myself getting overwhelmed at times. Even though I COULD do a trach change on...
299
Billy Nagey
ssb_bjgn@...
Jun 24, 2001 9:35 pm
Hey Margie, and everyone, we have WONDERFUL NEWS!!!! Mallory was decanulated last Monday after a scheduled bronch. We are so thrilled. She also just turned...
300
flor tiran
vettesky228@...
Jun 25, 2001 1:59 pm
... he ... like ... that we have to do for them. I just use soap and H2O ... depending ... monthly and we haven't had no problems. The RN from ... change trach...
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Laurie
LLLORY@...
Jun 30, 2001 1:27 am
I just joined this list this moment. My baby boy was trached yesterday. I'm so full of grief and anger. What will happen to him? Will he be able to speak?...
302
Charlee Velazquez
charlee@...
Jun 30, 2001 5:35 am
Lets us know more about your baby. Rest assure you will "survive". Canīt you get nursing care for the first weeks at least? Are you home? We have all been...
303
SCJPIZZO@...
Jul 1, 2001 3:11 am
Laurie- My son is 10 months old and was trached at 3 months. I can so relate to your feelings right now. Be strong. Know that you will get through this time...
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Brenda Jagger
jaggerrl@...
Jul 2, 2001 2:10 pm
Laurie, I am a grandmother to a 10 month old boy with a trach. I hear your frustration, concerns, and anger. Seth wears a heart monitor at night and if he...
305
LLLORY@...
Jul 2, 2001 5:37 pm
Thanks all for responding. Travon is 5 months old. When he was born he had a very bad heart and went into kidney failure. As a result his lungs filled up...
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Brenda Jagger
jaggerrl@...
Jul 3, 2001 6:05 pm
Hi, I can see why this situation is so disheartening. You have heard him coo and make all those sweet baby noises. My daughter has adjusted well to her ...
307
Charlee Velazquez
charlee@...
Jul 3, 2001 6:15 pm
Laurie: Most probable you will hear Travonīs voice again, maybe soon. I didnīt hear from my daught for like 3 month, untill she started using the Passy Muir ...
308
Billy Nagey
ssb_bjgn@...
Jul 10, 2001 11:28 pm
I'm so sorry, it is so overwhelming at first, but rest assured from experience I say all the "maintenence" you have to do with your baby will become as easy...
309
Cynthia Bissell
cmbissell@...
Jul 30, 2001 11:19 pm
Hi All, I've just set up a Tracheostomy Web Ring to link tracheostomy-related home pages. The ring is intended for adults or children with tracheostomies and ...
310
Cynthia Bissell
cmbissell@...
Aug 6, 2001 1:50 pm
Hi All, Aaron's Tracheostomy Page was recently sited in a new American Medical Association publication as an example of a community web site. Just wanted to...
