I have some extra trachs that my son can not wear. There are two 4.0 neo shileys one 4.5 neo shiley and one 3.5 bivona. All I am asking is for shipping $4.00...
Olivia has been very sick this week. We first noticed that when the weather would change and cooler temperatures would happen back in October that Olivia ...
JD was having some problems again breathing. David and I did everything we could last night and when I started bagging him, David called 911. We knew there was...
Oh no Poor JD.. I hope this all ends soon for him. I hate it when my baby is always in the hospital. He has been home this time over a month and its pure ...
Alo has been doing well.. He has had a few episodes of tachycardia, high temp and low sats, but things seem to sort themselves out. He has also had a few...
First of all, JD is getting RSV shots. Today he was having trouble breathing and nothing was working. The doctors had bag him and he went up to the ICU floor....
Hello All, Hoping this update finds you well. We are doing fine. Miss Shelby had an ENT appointment today. She has infection in the right ear and is on drops...
Hello, I don't post much but would like some help with something. Carson is 21 months old and has a trach (not on O2 or a ventilator). We have never taken...
I havent travelled with my son.. only about an hour away and that was with all of his equipment (vent, o2, feeding pump etc) and that was for Thanksgiving......
Hi Melissa - just to set your mind at ease, we've traveled with Sam quite a bit. He has a trach, but no oxygen or ventilator, like your son. He's almost 2.5...
Standard advice but I would suggest a trial run before hand to make sure you have everything, we found problems at night with no light in our car, so now we...
Hi, Melissa! We just got back from the trip with Joe down to Cinci...we are in Detroit, so I think it's pretty much the same trip as you. We have made the trip...
... a trach also and we took our first trip this past week. I didn't realize all the things you have to have. The trunk was full of all his machines. He...
My family lives in Colorado but unfortunately we're not going to make it out there this Christmas with Jack. Just out of curiosity, how have people traveled on...
*shrug* That would be interesting tho.. Im assuming they would just scan it and make it count as one of your carry-ons? Ive not flown with my kiddo but he is...
Katie - we have traveled with Sam to California, London, and even Holland. The suction machine caused no problems, even though we were anticipating big ...
I never explain the sucker...I just use it and look at Joe lovingly and say,"There, can you breathe better now?" No one has EVER commented on it. Janine ... ...
Hello, My daughter was seen a couple weeks ago in Cincinatti and had lots of testing to see if she is ready for the reconstructive airway surgery. We found out...
We didn't have to get the Nissen done, but Joe has had the double- stage tracheal reconstruction done there, so I can answer any questions about that you may...
My son had the nissen surgery done.. but his was done along with 4 other things..Making it a total of 5 operations at once.. he did great with it.. He was cut...
I was so excited after this last trip to Cincinnati! Even though Joseph had had a successful reconstruction, the doc was still worried about some tracheal...
Isnt it so great the little things that make us happy.. Congrats on the good news! ... -- Khourtniey http://cschulist.avonrepresentative.com/ Mum of two...
Hi - my son had the fundoplication done when he was 3 weeks old due to inability to swallow and reflux problems. (Of course). Because the NICU didn't have a...
Merry Christmas Everyone!! JD just got moved back down to the floor yesterday. Here is what we now know. JD is off the BiPap Machine and back on his home...
A nissen will allow food to go down but not back up.. It has nothing to do with swallowing... It creates a one way port into the stomach from the esophagus.....
Hi all, Lot happening here as usual. Hope this update finds everyone well. After starting the antibotic last Wednesday night by Saturday we had diarrhea so I...
We are going to Cincinnati Children's Hospital to see Dr. Cotton and his team on Jan. 8 - 11. Anyone else going to be there then? I'd love to meet someone in...
