I remember the first time I took Joseph to the doctor by myself...it took 30 minutes prep time and two trips back home, and by the end of it I was ready to...
I really enjoyed reading your post. It made me feel good and that I am not alone. Do you have any pointers as to how you carry all the equipment? Do you use a...
Joe doesn't have a vent, like some of the kids. We carry a suction machine (hangs by its strap on back of stroller) and the diaper bag with all the emergency...
Wow that's amazing about Kellie. If Kellie has any pointers please please send her my way. I only have one older daughter and I am complaining? Kellie makes me...
Quick Question Olivia and JD's birthday is coming up on the 13th. Wow, I still can't believe it. Anyways, we having their birthday party on the 9th. My cousin...
YES, DO IT! Its great to play in cake, just put on a hme(humidvent) and let him go for it. They only have one 1st birthday. I know its scary but just do it....
On Emma and Ella's birthday last year, we let Emma "taste" some cake in her mouth and then made sure we suctioned her mouth good (she has NO swallow at all)...
Greetings, We just returned from Jamaica last night so I'm catching up on my emails.... We had a wonderful time and all was well...our first trip out of the...
Hi there Kellie, Thanks for writing me. My daughter was operated here in Baltimore by Dr. Luca Vracelli (think that's how you spell his name), at John's...
Hi again, Cai's dad here sorry not posted much since I first introduced myself but things are busy and although reading the posts I haven't got around to...
Hello Leslie, We spend our time between Georgia & Michigan......Also we spend a great deal of time in Cincinnati as that is where we take Seth for all of his...
Data Entry/Ad Typist at Home At home data entry position. Great opportunity for stay at home moms or anyone who wants to work in the comfort of their own home....
Good Evening, Hope everyone is well as we are. Shelby started Bible Playschool today and loved it. I knew she would. She is also wearing the passy-muir valve...
Very interesting because I worked for a major retailer who also instructed us not to spread the word about this very same program. I think the stores are...
Can you please explain how you put the hole in the speaking valve? Did you do by yourself or have a therapist/doctor show you? Because my son can't stand...
Hi all! Im mum to a 27 weeker with spina bifida and a load of other problems. Im going to be bringing my son back home in the near future. He has been in the...
We kept the baby in the living room for about the first five months. We put the compressor on a side table near a porta-crib, the sucker nearby and the monitor...
My daughter Emma is on a vent. We have her in a bed in our dining room , our doc suggested it that way she would also be in view of us and also so nurses can...
Well, Gavin had his 2nd scpe done on Thursday, and there is no change. He has subglottic stenosis. He was trach'd at 3 months, considering hewas a 28 week...
Hi Marsha! That's the same type of surgery that Joseph is going to have done in October. It took about 12 weeks just to get him on the surgery schedule because...
Hi! My 27 weeker has subglottic stenosis, as well as tracheal malacia bronchial malacia and larngyl malacia. He was not trached until he was every a year old...
Im not sure how each state is, but when my son first comes home he will get 24 hour care for 30 days, then 20 hours a day for 30 days then 16 hours and so on.....
Well we dont have a car right now so we usually walk with Emma. She rides to all her appointments in a wheelchair lift van provided by medicad. That is not a...
Thanks. He has been home before with a feeding pump and on oxygen, but never with the trach and especially not the vent! Im sure its just going to take some...
I just watched the video montage of your beautiful girl. I was on the verge of tears! I also looked at the picture of the machines. My sons pulse ox is a lot ...
Hi everyone, There is an oxygen adapter that passy-muir carries which allows your child to wear the passy and O2. I don't know if you can purchase them...
Well I am not up and down with Emma at all anymore, now her rotten twin sister in another story! Our nurses pretty much change her diaper and start her feeds...
