I don't think GA Medicaid is going to let us go to Cinci, even though they're only secondary. I'm so pissed. I want to move there. Frustrating. Has anyone been...
1882
The Turners South
seamustim2000
Jul 1, 2006 3:46 pm
Our Mic-Key buttons last 1-2 weeks, and Malcolm does not pull them out. They get pinhole leaks. Jessica and Malcolm...
1883
Janine Glinn
glinnreliv
Jul 1, 2006 8:03 pm
We have Michigan medicaid, and they have requested lots of letters and proof, etc. I still don't know if they will cover all of it, but Blue Cross is getting...
1884
meatkutter1211
Jul 3, 2006 4:52 pm
He all! MY son is 6 months going on 7months. Our Pediatric ENT told us to change his tube once a month and then 2-3 after 9 months. At first is was easy when...
1885
erin32573@...
scatchmo75165
Jul 3, 2006 5:24 pm
Are you talking about the trach? You need to change that out once a week or when it is necessary due to a plug. If you son is on a ventulator that has some ...
1886
redneckdaisy mcclain
redneckdaisymom
Jul 3, 2006 8:33 pm
i a sooo glad that JD is doing well at home i understand how hard it is to have your child traped in their own room sierra was stuck in her's for about 2...
1887
Karin Hardman
belcantomom
Jul 4, 2006 8:30 am
I'm sorry that you are having such difficulty with your son. Our ENT also suggested changing the tube once a week or so, but every dr is different. One thing...
1888
Becky Fusco
beckyfusco
Jul 5, 2006 12:21 am
Hi everyone. We have 28 extra unopened Zevex Enteralite 500 ml bags which we no longer need - our son now uses the Zevex Infinity pump, and these do not fit...
1889
Karin Hardman
belcantomom
Jul 5, 2006 2:26 am
I would love them if they are still available. We have the enteralite infinity, is that the one you used to have? Can I ask why the switch? Thanks! Karin ......
1890
Ask and I may Tell
hydrogencyanide
Jul 5, 2006 9:51 am
Hi, I just joined the group, we are in the process of adopting a 4yro boy that is trached and has a "g" feeding button. Cody is learning to walk and sit up for...
1891
Becky Fusco
beckyfusco
Jul 5, 2006 12:26 pm
These bags are for the Enteralite machine not the Enteralite Infinity. We changed companies and they made the switch....our son is currently on 24hr feeds so...
1892
Janine Glinn
glinnreliv
Jul 5, 2006 12:55 pm
Congratulations! How wonderful that you are opening your heart and home to another child to love. I don't know what a trach with an older child entails, as my...
1893
Becky Fusco
beckyfusco
Jul 5, 2006 1:33 pm
Hi, We have just been approved for the Ohio Homebased Waiver which will finally give us Medicaid assistance. We have been looking for nurses for the night...
1894
Karin Hardman
belcantomom
Jul 5, 2006 1:57 pm
Ah well, I guess these won't work for us then. Maybe someone else. Thanks anyway. :-) Karin ... -- mommy extraordinaire to Zeke, Abish and Belen...
1895
Karin Hardman
belcantomom
Jul 5, 2006 2:10 pm
We have nurses during the night. They sit in the same room with my daughter (that's the point, isn't it? to have someone to watch the child?) and monitor her...
1896
Ask and I may Tell
hydrogencyanide
Jul 5, 2006 2:50 pm
What trach valves are available to let the child learn to speak easier? Any links so I can see what they look like? He's in OT and ST and when we get him will...
1897
Janine Glinn
glinnreliv
Jul 5, 2006 3:21 pm
We do not have a nurse, but I was talking to a woman whose child had a trach, and she gave us a few tips to look for: Make sure the nurse is used to working...
1898
Becky Fusco
beckyfusco
Jul 5, 2006 3:46 pm
This is great information. Thanks!! This might be a goofy question but how are they watching movies? Are they using headphones and where is the TV? Do you ...
1899
erin32573@...
scatchmo75165
Jul 5, 2006 6:44 pm
We have 24 nursing care right now since our son has been home. He has only been home for a month. Our son has a trach, vent (is on room air) and G-Tube. Our...
1900
Karin Hardman
belcantomom
Jul 5, 2006 8:27 pm
We don't have a TV, just a computer with a DVD player in the living room by the baby. they watch with the volume down low. Belen doesn't wake up unless...
1901
Bonnie Cowan
hanjacxan
Jul 6, 2006 2:03 am
Hi Becky, Sorry it has been so long! To answer your nursing questions, the nurse just takes care of him at night and takes care of anything that is affiliated ...
1902
tracie
redneckdaisymom
Jul 6, 2006 6:08 pm
i need some advice my daughter will be 1 yr.old next month(yea!) she can not eat anything by mouth. so i don't want to have a cake and ice cream party. does...
1903
Tony Sizemore
mac08052003
Jul 7, 2006 12:43 am
12 hours from now we are going to be to be at the hospital checking in. She has a 10:00 surgery time. We meet with the doc's this after noon for the finally...
1904
Tony Sizemore
mac08052003
Jul 7, 2006 1:17 am
I just wanted to say thank you one more time for everything you have done for me and my family judy. You are such a wonderful and selfless person. We are very...
1905
Janine Glinn
glinnreliv
Jul 7, 2006 2:17 am
I understand about no cake and ice cream, but you would probably want to have something for your guests, without being mean to the baby. But for activities,...
1906
ilovethe80stlp
Jul 9, 2006 8:55 pm
Hello, For those of you who have home nursing can you tell me what duties your nurse performs? We have had a nurse for a couple months who I feel is not doing...
1907
ttimes33@...
isew4us2
Jul 9, 2006 9:17 pm
Our nurses don't do anything regarding setting up appointments, med refills, ordering supplies or anything of that nature either. Nor do they speak to doctors....
1908
erin32573@...
scatchmo75165
Jul 9, 2006 10:06 pm
From my understanding, if you have home care nursing then they are concerned with whatever takes place with your child while they are on duty. Our nurses will...
1909
Tony Sizemore
mac08052003
Jul 9, 2006 10:18 pm
Margaret covered it pretty well. I just want to put my two cents in to agree with what she said. We are really lucky in that our day nurse treats Mac like she...
1910
kellie davidson
kelliern2002
Jul 9, 2006 10:19 pm
I have one bit of advice...... DO NOT leave your daughter alone with this incompetent nurse!!! We heard all the horror stories about home nurses.... and...
