She doesn't wear anything over her trach. The doc said that was fine. Only time I use the HME is when we are bathing her. I do not care for the HMEs they make...
LAndon will be having a vp shunt placed on Monday. WE are very scared but knew that he would eventually need it. My husband's mom is being horrible about it....
Hi Amber I am so sorry you have to have the added stress of your in-laws being not so supportive. You are 100% correct with the statement "i have to do what's ...
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Today has been a very long day. I guess David and I will be many more of these days. It started off that we got a phone call from the Children's rehab center...
My son is having a ph probe and impedence test done next week. Have any of the kids here have this done? Yaacob is trached and has a g- tube just curious how...
my prayers are with you and yours jonathan after his open heart but befor his trach he got an infection in his heart and they now believe that it is what...
Amy, Landon had ph probe 2 weeks ago, the stick probe down one nostril and into the stomach. Stays in for 24 hrs. Ours showed that LAndon refluxed 36 times and...
Hello, Carson is 14 months old and has eight teeth. I took him to the dentist today for the first time and I was told that he has eight MORE coming in now and...
I'd say, talk to his surgeon. It's normal to have mucous from the sinuses while teething (runny nose) and maybe even some vomit from the large anount of...
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is JD still in childerens here in dallas? i was just worndering cuz Sierra is here again for some heart and sleep apeana problems.we will be here til at least...
Has anyone ever had this happen? When we feed our son, the formula really gets in his trach a lot. We have talked to the ENT, he had a swallow test done, but...
This coming Wednesday will be the first time JD gets to come home. We are very excited and know that there is going to be some adjustments espcially with ...
Do you mean that it is dripping out of his mouth into his trach or actually coming out of his trach? This could be very serious, especially if it going into...
jonathan used to have this problem due to his refluxing once he had the nissin done which took care of the reflux issue it stop happening it is something that...
A nissen is a rocedure which sews the sphincter into the stomach closed. It's usually used when you have a lot of reflux and are a high aspiration risk....
Good Afternoon, We have been doing well here other than Shelby having a cold. She seems to be feeling better. She is cruising a lot more and stacking boxes...
JD’s home! Good, I got your attention. For nine months David and I have been waiting for this moment to bring our son home. We got up at 5am on Wednesday...
CONGRATULATIONS wow how wonderful i am so happy for your family that JD is finally home it is could that you already understand that he will need to adjust...
so generally...a nissen is performed on a child who already does not take anything by mouth. Although theoretically, it works as a one-way valve allowing...
nissen works as a 'one-way' valve. my son has a nissen and eats by mouth. it just makes it quite hard for anything to go up through the stomach, but does not...
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We are set finally to go to Cincinnati next week to see Dr. Rutter, et al. I am getting really nervous. I hate some of the test Joseph will have to have done,...
We will keep you and your family in our prayers. My son had a swallow study done and it was no big deal at all! They know what they are doing and it will...
Hello, What a week it has been for us. Thursday, Shelby went for a swallow study and an ENT appointment. The study revealed that she can eat pudding ...