Hello Everyone, Is it normal to have increased secretions while feeding your child? I have noticed this with my son and wonder if it is normal.....also does...
Hi All, We are off to Disney World early in the morning. We will be home late Sunday night. Then Shelby's surgery is on Tuesday. Please no emails during this ...
Hello everyone...I am a mother of a former 25 weeker that has been trache since August 2005 and he was trache because he was on the vent for long time, has...
JD is having some pretty good days. Since yesterday he has been between room air and 23%. I have been holding him, putting him on my lap. He is scheduled to...
Good Afternoon, Shelby went in for surgery this morning around 8 and was out by 11. Everything went well. She now has a trach like Mommy and looking beautiful....
Hi everyone, I don't post much but need advice on something. Carson had his follow-up appt with ENT today. They took some xrays and it shows that he has a...
It gets harder and easier it seems. Luke is very strong willed (he's 2 now) and if he doesn't want to be suctioned it's pretty tough, laying him flat on the...
As I sat there I thought that one of two things must be happening, either I am dreaming or I have lost my mind because I simply could not believe what my eyes...
My daughter is younger than your son (just turned 1 year last week), so I can't speak to you about how it goes as they get older. But, we've never used...
Well, the time has finally arrived. Lydia's segment of the Facemakers show will air tomorrow night (Wed) on TLC at 9 eastern time, 8 central time, 7 pacific....
Hi, I am Ian father to Cai who is trached and six months old. when we did the daily band changes in hospital it was most tmes no problem, but since having him...
have you considered changing to a chain? liam had a chain at that age, and that way we didn't have to change it daily, and didn't have to worry about it ...
Well no not yet, but its a good idea, however Cai has a big pad as seen in this photo, what do we do with that, still change it daily or do you just leave...
Good Afternoon, We are in serious condition still at this point. She looks great. She will remain on the vent for another 4-5 days for the healing to begin....
i am a new member with a 8 month old trach baby. she isn't on a vent (yet) but she has had a trach since she was one month old and they still don't know exacly...
Is the chain for small babies? I saw a picture on the internet and it looks like a baby could just yank it right off. The one I saw had a clasp fastening it ...
This morning I was at the hospital early enough to spend some time with JD before surgery. He was very happy and fell asleep in my arms. He went to surgery ...
Hi Tracie, Welcome to the board!! How old is your little boy? What hospital do your children go to? We have a 2 year old little boy who is trached & on a vent...
we have used a chain ever since liam was trached. i know certain docs do not use the chain with very young children (i don't actually know the reason) but we...
Hi All, we tried a different technique last night which worked much better, we removed the pad and then cleaned around the stoma with the tie still in place...
Well, Olivia had her surgery today and man did things changed, before she went in for surgery she was at 20 bpm 31% o2 after surgery since she had a huge...
it gets better! the whole first week after liam got his trach, i was thinking 'what am i doing?'.. he was uncomfortable and they couldn't get the vent settings...
Dear Olivia's mom, The NICU/PICU attending, the surgeon, ENT, or a nurse practioners should come and explain what is happening with Olivia. Of course you...
What a difficult experience you are going through! You made the decision to go ahead with the trach with the information that you had. Don't beat yourself up...
Hi All, We are doing well. Miss Shelby is still under sedation but improving everyday. They will start weening her from the vent soon. The trach will be...
what a rough day you are having im so sorry my first day wasnt that bad but it did have it moments just a little bit of advise give it another day or two...
Just wanted to let you know that I know how you are feeling and that it will get better. I am still very picky about the way people suction my daughter and she...
... settings also for a serious air leak and they are also suctioning her a lot too. She is heavily sedated, I was wondering how did you get them to change her...
Okay, I know we have felt this way sometime or another regarding our children. Today I felt at fault about sometime and helpless. David and I went to the ...
I don't know what anyone can say as you are obviously going through a really rough and difficult time and i really feel for you. NEVER feel like you are a bad...
