Hello everyone I have a 9 month old son, Joe who has had a trachy since he was 2 months old. We are from the Uk but moved to japan in january, flying with...
1066
aw82797
Jun 1, 2005 8:27 pm
Hi, Julia and welcome to the group, Is your son on a ventilor or just has the trache? My 22 month old son has a trache and is on oxygen we just flew last...
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Cindy Bissell
cindybissell
Jun 2, 2005 12:00 am
A couple of helpful links: http://www.tracheostomy.com/resources/travel/travel.htm http://www.tracheostomy.com/resources/travel/travel2.htm Sincerely, Cynthia...
1068
Peter Fairbrother
pjmj2japan
Jun 2, 2005 1:24 am
Dear Angela Thanks for that. This is the first time i've joined this type of thing but i think it's a good idea to share stuff. By the sounds of it we should...
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cchingka
Jun 8, 2005 4:12 pm
Hello My son Yannis (5 month) needed a compressor. We were considering Devibiss heavy duty and EasyAir PM15F. Do let me know if you had any advise on the...
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Brina Morgan
jac0614
Jun 8, 2005 9:06 pm
Hi ck My son have an EasyAir Compressor from Precison Medical. (I think) the last one he had was from DeVilBiss four years ago. I'm sure they upgrade by then....
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Sarah
lizzykewlness
Jun 9, 2005 4:56 pm
I have that same one now (2nd pic). We use distilled water from the store though. There are two different nebulizers (sp?) we can get. One has a yellow top...
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Brina Morgan
jac0614
Jun 9, 2005 6:59 pm
Hi Sarah My son doesn't use a mister, what is that exactly? He wears a "T" vent on the end of his trach during the day and is hooked up to the air compressor...
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Sarah
lizzykewlness
Jun 10, 2005 4:41 am
Sorry a mister is just a nickname for the compressor. ... __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the...
1074
leba263
Jun 10, 2005 11:02 am
Hi my name is Danielle and I had a little baby girl 3 weeks ago who had a tracheostomy fitted when she was 36 hours old she was born with a stridor that didnt...
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Chrissandra Cobb
chriskayla2
Jun 10, 2005 9:04 pm
HI Danielle, I am also new to the site....and I just want to say that you may be scared now but once you start with the trach care and all of the going on...
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Sarah
lizzykewlness
Jun 10, 2005 11:19 pm
My son Luke is 15 monthes old now and has had his trach since a week old. He's my only child so I don't know what it's like to have a baby without a trach. ...
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Peter Fairbrother
pjmj2japan
Jun 11, 2005 12:49 am
Hi there. My name is Julia and i have a little boy called Joe who was born at 1 1/2 pounds. After 2 months in intensive care (and stridor) he had to have a...
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Brina Morgan
jac0614
Jun 12, 2005 10:12 pm
Hi Sarah, My son Jeshua, will be four on Tuesday, and he has had his trach since he was two months old. He was born 1lb 13oz (28 wk gest.) He was trached...
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Peter Fairbrother
pjmj2japan
Jun 13, 2005 11:35 am
Brina, Your story sounds scarily similar in that of my son Joe, now 10 mths, who had to have his trachey after a failed hernia op. We are hoping that his...
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Brina Morgan
jac0614
Jun 13, 2005 8:58 pm
Hi Julia Yeah he was very small. None of his clothes fit, but I did not complain because he was still able to wear them six months to a year later. He still...
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Peter Fairbrother
pjmj2japan
Jun 14, 2005 2:17 am
Hi there Sounds like you've been through it..it's tough isn't it. In fact, Joe doesn't need a g-tube at the moment. He eats well and is generally putting on...
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seamustim2000
Jun 14, 2005 2:52 am
But coming home soon! Malcolm had an emergency trach about a month ago because he has subglottic stenosis because of prolonged intubation (and ...
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Raven Davis
raven_1211980
Jun 14, 2005 1:39 pm
hi there im raven 24 yrs old with little jonathan trached for 2 years now well i am so glad to hear your little one is doing good and scheduled to go home...
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Sarah
lizzykewlness
Jun 14, 2005 10:49 pm
I also think it is easier to put the ties on before we change the trach. I have the emergency trachs (3) with ties already on them (one nurse was upset with ...
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forsythelabs1
Jun 15, 2005 12:56 pm
Hello to all, I am a new member. My twins, Eric and Lauren were born on March 25 at 28 week gestation. We had to take them C-section because Lauren was IUGR,...
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karemd2000
Jun 16, 2005 8:29 am
Hello to all! My name is Carissa and I'm new to this group. I gave birth last May 10, 2005 to our first baby, a full-term 7lb. and 8 ounces baby girl named...
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Carol Lynn & Jeff Joh...
forsythelabs1
Jun 16, 2005 11:23 am
Are they using caffeine for the apnea??? I know she is full term but it might be wise to try it till she "grows out of it". She can suck correct? Did they do a...
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Carol Lynn & Jeff Joh...
forsythelabs1
Jun 16, 2005 11:26 am
How are her vent settings? Are they low? Can they wean to Cpap? Carol Lynn Oh I am a critical care/ Trauma RN and my husband is a Family Practice Doc. Our...
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Carissa Lapus
karemd2000
Jun 16, 2005 1:17 pm
Hello! It's nice to hear from you. Hope your daughter is doing well and that her weaning will be successful. It's very frustating to wean and then to go back...
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Chrissandra Cobb
chriskayla2
Jun 16, 2005 3:48 pm
Thanks, thanks thanks, because I never thought of putting the ties around first,. that is a great idea. I have just been doing it all by what I learn from the...
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Carol Lynn & Jeff Joh...
forsythelabs1
Jun 17, 2005 1:14 am
Look at these sites http://www.nichd.nih.gov/cochrane/Steer/Steer.HTM http://neonatal.peds.washington.edu/NICU-WEB/apnea.stm#Methylxanthines1 ...
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Carol Lynn & Jeff Joh...
forsythelabs1
Jun 17, 2005 1:26 pm
Congrats about taking your son home!!!! Carol Lynn ... From: Chrissandra Cobb To: Tracheostomy_infants@yahoogroups.com Sent: Thursday, June 16, 2005 11:47 AM ...
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Carol Lynn & Jeff Joh...
forsythelabs1
Jun 17, 2005 1:34 pm
Did the web sites help???? One of them says that they will do a neo consult over the phone???? Maybe you could do that? What gestation was your daughter born...
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Chrissandra Cobb
chriskayla2
Jun 17, 2005 2:53 pm
Hi Carol Lynn I just wanted to assure you that this will all come as a second nature to you. You are just in shock right now and don't be ashamed of your...
