This PWS E-Mail Support/Information Program is sponsored by Prader-Willi Syndrome Association (USA) to provide information and support to the siblings of individuals who have Prader-Willi Syndrome (PWS). Participants in this eSupport Group provide support to each other, share information and coping strategies, and discuss issues related to being the sibling of someone who has Prader-Willi syndrome. The program provides the opportunity to connect people who wish to share their experiences and feelings concerning their unique day-to day experiences living with a brother or sister who has PWS. No one need feel alone.
Subscribers on the Sibling eSupport Group list should be individuals who have a brother or sister who has Prader-Willi syndrome. Additionally, some helping professionals may join the list in order to better understand the experience of siblings, to learn more about PWS, and to offer helpful comments and understanding from their perspective.
For more information or if you have questions about PWSA’s Sibling eSupport Group, please contact the PWSA (USA) office at national@pwsausa.org or call 941-312-0400 or 800-926-4797.