My son has CP and severe to profound hearing loss. We went in 2007 and 2008 in
China for umbilical stem cells treatment. One of teh outcomes and they have been
many was the improvement in hearing loss. Each time I decreased teh power of teh
hearing aids. From their case studies they say in 6-7 treatments you recover
your hearing loss.
 
I also know they had several patients with no vision that after one treatment (
6 injections) started to see with glases. This is something you may want to look
into. There is a group BIA4kids on which lots of parents went to China for
treatment of neurological and degenerative diseases including hearing loss and
lack of vision.
 
Their website is stemcellschina.com
 
The places specialized in children are Hangzhou and Quindao
 
 
Varinia

--- On Thu, 7/16/09, maynardslp <maynardslp@...> wrote:


From: maynardslp <maynardslp@...>
Subject: [PACT] AAC with Kabuki Syndrome
To: PACT@yahoogroups.com
Date: Thursday, July 16, 2009, 6:44 AM


 



I recently met a 2 year old with a diagnosis of Kabuki Syndrome. The family told
me that the young boy has a degenerative disorder and will likely lose his
hearing and vision, and that both have declined over the past 6 months. I have
been researching this syndrome today, and have not come across anything
indicating the complete loss of these senses that were described to me. I am
hoping that someone may have more information about this so that I can have a
better idea in organizing an augmentative communication system for him. I would
love to hear what others have used in the past as I am only finding research
about speech and sign language.



















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