Dear All, Hello and welcome I thought it might be a good idea to kick off with a first question. I wondered whether anyone is fortunate enough to have access...
We are Sande and Bill Nuttall. We have two delightful daughters, Marion age 7 and Florence age 17 months. We live in Letchworth and have an aged grumpy cat...
Hi everyone. My name's Julie. I'm married to Paul and live in Hitchin. We have three lovely sons, Mark age 9, who has Down's Syndrome, Alex age 7 and Adam...
4
nuttall@...
May 17, 2006 8:15 pm
Thank you for doing this Julie, it is really good to have an introduction. Anyone else inspired? ... Sent with "Me-Mail", Boltblue's FREE mobile messaging...
Hi, I'm Frances and I live in Hitchin with my husband Adrian and our two children, Lydia who is 5 and has DS, and Evan who is 3. Lydia's last CDC report...
6
NHDowns@yahoogroups.com
May 19, 2006 6:51 pm
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the NHDowns group. File :...
Just to let you know I have mailed out most of the newsletters today (keeping a couple back that I still have to make calls about). I will sent them out...
Dear Frances, Julie, Barbara, Paul It sounds like we need a meeting to go over charitable status issues and fundraising strategy for the year. Anyone want to...
Dear All, Apologies to you if this is a repeated message. I seemed to lose one just now. I have uploaded a file - the Spring Newsletter of the DSRF. It is ...
Dear All, Just to say that thanks to Julie's stupendous Awareness week tea party and (in a much smaller way) Florence's, we have raised over £200 for the...
Hello, thankyou for the invitation to join your group, sorry it took so long for me to join i had trouble getting an identity!!!! My name is Helen Long, I am...
Hi Helen! Good to hear from you. It sounds like the Bedfordshire Group is providing a very good service. Hopefully we will be able to do something similsr in...
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nuttall@...
Jun 25, 2006 3:55 pm
Good to have you on board. You probably remember but I have an 18 month old daughter with DS and a 7 year old without. We are relatively new to this world but...
24
NHDowns@yahoogroups.com
Jun 25, 2006 4:58 pm
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the NHDowns group. File : /Constitutional...
25
SAMMELSJ@...
Jun 25, 2006 7:31 pm
Hi Sande, sorry not been in touch. I have been rough with an ear infection and Holly is off to GOSH tomorrow for surgery so once this is all out of the way we...
Good to hear from you Karen, Let us know how Holly's Surgery goes and best of luck. The events listing is in the newsletter which you should have recieved a...
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SAMMELSJ@...
Jul 3, 2006 5:46 pm
Didn't quite know how to take your email Sande ? I too have tried to be optimistic, the point i tried to get accross is that not everyone feels blessed and ...
Dear Karon, I am beside myself. I just spent an hour writing you an email that I hoped would put your fears to rest, reassure you that I did not remotely mean...
On Tuesday 4th July, Julie and Sande had a meeting with Margaret Bracey, the Community Development Officer for Hitchin, and Diana Foley, a health visitor who...
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nuttall@...
Jul 5, 2006 2:22 pm
Thanks Julie, this is a good summary. I can't resist adding a couple of comments. We also discussed our area and if this sort of plan gets off the ground we...
Dear All, We attended a summer barbecue for the Bedfordshire Group yesterday and met a lot of really nice families. The host of that event is having the DSA...
I have been asked to canvas our Group on behalf of Ros Cramp (North Herts School Sport Partnership) . Ros has been funded to work in North Herts to try and...
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SAMMELSJ@...
Sep 11, 2006 8:02 pm
i would like to see swimming sessions for disabled children which i have enquired about at stevenage swimming pool but i can never get any accurate ...
Hi Julie, I don't have much of an answer. My family is not at all sporty and all I expect is opportunities to exercise and I may be naive but I have it in mind...
I assume everyone has heard about or seen the down's syndrome plotline on Eastenders. If not you might want to look into it. I spoke to Paul Zannon from DSA at...
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Barbara Burnett
barbaraburnett52@...
Sep 11, 2006 10:58 pm
Hi all I am not at all active on this mailing list as I am moving shortly, but I thought I would pipe up and share a little of our experiences: Lauren is...
... Hi Karen, Thanks for your reply. I shall forward all the responses to the person conducting the survey. Regarding swimming, I'm not sure about Stevenage...
During a meeting of the Up on Downs support group on 16th September we updated our structure in light of the requirements for funding, publicity and...
Dear All, The following information on Riding for the Disabled Classes out of school hours has been provided by Frances (thank you again). I have only put the...
I just wanted to update you all briefly on what we've been up to recently. You should shortly be receiving the next newsletter, but here are some highlights. I...
