This is an information and education group for patients, family members, and medical professionals focused on Islet Cell Tumors. This list is monitored by medical professionals, and is a good place to ask questions about the disease and to share clinical experiences.

This is NOT an emotional-support group.


ALSO, UNdiagnosed patients are NOT allowed to post to this list until they have been diagnosed by tissue sample/pathology beyond a reasonable doubt. Additionally, a (BIO) message must be submitted to the list within 24 hrs of joining and accepted/posted to the list before any other messages will be accepted.

There is a very good group specializing in serotonin producing carcinoids (Typical and Atypical most frequently arising in the GI tract). That list is the 1,050+ member group at Carcinoid-y@Yahoogroups.com .
Go To carcinoid-y-subscribe@yahoogroups.com.

Islet cell tumors are some of the rarest of the neuroendocrine tumors, and include VIPomas, gastrinomas,somatostatinoma, grehlinoma, insulinomas, glucagonomas, and pancreatic islet cell carcinoids and carcinomas. Also pp omas (pancreatic polypeptide secreting tumors or non functional islet cell tumors).

Some islet cells are non-functional. They do not produce a hormone (if any) which, as of yet, the medical profession can identify or a syndrome which they can recognize.
The best source on Carcinoid is at www.carcinoid.org and it carries info on other NETs like Islet Cell. If you have a Carcinoid diagnosis, join the largest carcinoid informational discussion list on the internet - carcinoid-y@yahoogroups.com
The owner of these lists is CL Hamilton who can be contacted at chasm@texas.net. He was diagnosed with carcinoid in 1977.