... Ralph, Don't worry about being long winded. As usual, you give excellent advice, and that advice is now there for lots of people to read. For some it will ...
Bradley is on his 3rd weekend of prednisone. He gets it on Friday and Sat with supper (100mg). We have noticed that over night after his friday dose, he is...
He probably should take it at breakfast because it is hard on the stomach and with food is best. Yes, in some people it does seem to work as a diuretic,...
... From: Arlene <breezytimber@...> To: MD-List@yahoogroups.com Sent: Saturday, February 01, 2003 1:48 PM Subject: [MD-List] Re: Prednisone If a child...
HI Everyone...I'm trying to get a jump on this. Tim was rushed back into the Hospital on Friday due to some internal bleeding. His B/P dropped and he was...
Hi, A friend of mine has a son, 22, with DMD. His feet are swelling and the docs put him on a couple of diuretics plus support hose. My friends are concerned...
They had support stockings on Mike when he was in the hospital, however they seem to be tight. I would think if they are to tight they would cut off...
Hi Dee, I'm sorry to hear Tim had to go back to the hospital. I certainly hope that the new meds will help him to heal. You take care of yourself as well. ...
Dee, I'm so glad the doctors knew what to do. I really admire all of you who have these things to deal with, and do so admirably. Carol...
ILuvMere@...
Feb 4, 2003 1:18 am
8419
I put Josef's socks on while he is laying on his stomach. Then I can lift his feet up and put socks on because his knees can't go anywhere. Tell your friend...
Hi again: MJ is still feeling pretty lousy tonite. She can't lay on her right side as it hurts too much to breathe. Her sats were still up and down today...
Brenda, My prayers are with you. You are being so good with MJ. Please be careful and take care of yourself. Take care, Marie ... From: BracinKnee@......
Thanks Arlene and Andrea. Marie ... From: "Gapko, Andrea M." <gapkoam@...> To: <MD-List@yahoogroups.com> Sent: Tuesday, February 04, 2003 12:15 AM ...
Pichaske Family
pichaske@...
Feb 4, 2003 8:31 am
8424
Hi, Can somebody give me a writeup which I can present to the teacher explaining how it is with DMD patients when they turn 13/14 years old. Rohan is very ...
NUTAN DESHMUKH
nutan5@...
Feb 4, 2003 9:17 am
8425
These standard links on school issues are not as specific as Nutan is looking for. They are just too vague. ...
Nutan, I can do a write-up for you. Would it have more power if I used my university letterhead and mailed it? Let me know and I'll put together something from...
ILuvMere@...
Feb 4, 2003 10:45 am
8427
MJ got ulcers after her spinal fusion too, although not as bad as Tim. The GI we saw said it was somewhat common due to the angle the kids are placed during...
Having "time and a half" on tests is common in the US for students with disabilities. My son's master's degree exam was 3 hours, so he had 4.5 hours. Andrea...
New content on www.Dmdoptions.com for 02/01-04/2003 Medicaid proposal receives mixed reaction Some assail, others back Bush plan Jim Gassen Editorial Now is...
Thank you for posting the information. I hope others read it. It is some very interesting information. Arlene- -- In MD-List@yahoogroups.com, "davidfeder2003...
It has a lot of interesting information. It is very long, but there are a lot of issues you should know about. Several articles on Prednisone. Arlene...
I wanted to let everyone know about a book published in England by Anne Loader Publications written by Jonathan Colchester entitled "A Life Worth Living,...
Richard Haynes
rhaynes@...
Feb 5, 2003 3:37 am
8434
Hi guys: If you have time, check out..... <A HREF="http://www.our-sma-angels.com/Margaret/"> http://www.our-sma-angels.com/Margaret/</A> There are a lot of new...