From Medical News Today The first gene therapy human trial in the United States for a form of muscular dystrophy is under way. The clinical trial for Duchenne...
Hi everyone, is there a place that you go to purchase things that you need, like special chairs, home improvement items, or anything that would help in your...
Linda. There isn't one single place to get things we need. You've just got to find a lot of it on your own. Doing internet searches is where I've gotten a...
hi there, my name is Leo from Bogor, Indonesia. i've been diagnos with BMD last month, anyone with MD or BMD coming from indonesia also. thank you and God...
i'm still clueless about the resources in indonesia. i'm also still new about BMD or other MD. hopefully by joining this group i can find other resources. ...
Hi Andrea, I hope you get this because I didn't have immediate access to your email address. I just talked to Brian Tseng - he's wonderful and he sings your ...
Hi Linda, Try starting with the following link: http://dndpress.com/links_page.htm Maybe you can find some of the items you seek. Best of luck, Brian Denger ...
Hi and welcome to the group. There are a lot of good people here who I've gotten lots of good ideas from. One BMD-specific site to take a look at would be the...
"Recycle for Tim" is my choice of fundraising for the 2007 PPMD Run for our son's Marathon, and I am collecting Ink & laser cartridges from people to help...
My son is now 16 (DMD)and I thought that when he turned 18 that he would be able to collect social security. From one I am finding out now I may be ...
Some insurances may pay for homecare, I would start looking now. My son also has DMD and I work in homecare and I know my insurance will pay if I ever decided...
My son turns 18 this week. I am about to look into that very thing. My husband makes too much for us to have qualified for any programs in the past. But I...
Seth & DeeDee Fuller
sethfuller@...
Apr 8, 2006 10:08 pm
18323
Dedee Please let me know what you find out, I would appreciate it! My home email is Angelia@.... I don't know how we will be able to afford things if...
I work with a quadraplegic and he does alot of work to help people in these situations . I could ask him during the week.He also does alot of work with ada...
My Experience: When I was 18, I applied for SS and didn't have a problem getting it. My father made more than that certain salary that they have set - this...
It's my understanding that when a person turns 18 parents income is not taken into account for eligibility for the program. Note: This is for Supplemental...
You should be able to call one of the resources in your state for Medicaid and SSDI information. You could try Parent to Parent, the Parent Information Center...
And this is the main reason parents may set up a Special Needs Trusts. ... From: Jen F To: MD-List@yahoogroups.com Sent: Saturday, April 08, 2006 8:34 PM ...
SSI isn't a Federal program, but is a State program. That is why things are a little different from state to state, but every state has it. Adele ... From:...
My apologies, I wonder why it says that in the first paragraph on the web site? All I did was cut and paste that statement from there. You do have to put which...
Found some more info... http://www.ssa.gov/pubs/10026.html Quote from the above link; highlighting is mine Benefits For Children With Disabilities Supplemental...
At age 18, if you have certain disabilities, and having DMD is one of them, you qualify for SSI. But you've got to watch it, if there is more than $2,000 in...
I see I never finished my sentence. You should put all saving and any thing else that has a monetary value in some one else's name or if you can afford a...
Yeah, I see where is says that SS and SSI are federal programs, but for SSI, it all goes through the state. Medicaid is the medical program you qualify for...
Thanks for the good advice Adele, My son has a savings account that his Grandma uses to put money into. However, it doesn't have much in it anymore. I am...
