Sissy, I'm so sorry about your loss. The death of a child is probably the hardest thing for parents to go through. I wish I could find something better to say,...
I want to say I am so sorry for your loss, and hope you have many good and even wonderful memories of not just the courage and the support you all shared...
Well, just one little tiny comment...I think they *might* have wheelchairs in heaven, but only the really cool kinds, like sports chairs to play wheelchair...
We are so very very sorry for your loss. Our prayers are with you and your family during this time. If I may ask you or Viki, what sort of stomach problems? My...
Hi Vikki, I was just reading your post,, and was going to respond with a question and then I went into Samantha's and she is asking it for me, Tanner has been...
Justin is also complaining of stomach aches, he has also had almost constant loose stools for a couple of months now. Justin sees his pulmnologist once a year,...
Sorry, that was supposed to be PFTs every 6 months...not ofts....my typing needs alot of work on some days!!! SAMANTHA SAHM to Halee--6/19/92 Justin--4/14/96 ...
To Dana and all. I'm no doctor or specialist, but I think all of us who have older kids with DMD have become specialists in our own kids. But in my opinion,...
I truely think the stomachs are from needing to have a bowel movement....Just my opinion! Holly Samantha <Kmhjk5@...> wrote: Sorry, that was supposed...
Eric used to have more proplems until the doctor put him on Zantac. 2 x's a day. They have been what has helped the most. I would suggest the over the conter...
Is that what you believe Vikki? I always was taught that Eric would be normal in HEAVEN and that is what I shall hold on too. No more tears, no more pain. ...
This goes to show us all that our boys are all different even though they have many of the same symtoms. Yet some just do not do as the others. I wonder if...
Hi all, With all that has been posted of late, I would like to share my sons heart problems and the answers that I got from MDA in St. Louis, MO. Jon was...
SKumbera@...
Jun 2, 2005 2:38 am
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I disagree with you on this one. Most "believers" I know believe there is no pain or suffering in heaven, thus no wheelchairs. I remember my kids saying they...
Goes to show you that the medical "professionals" really don't know and are still learning about DMD. They use to say the slow language in so many of these...
In a message dated 6/1/2005 11:43:42 PM Central Standard Time, raybug10@... writes: Goes to show you that the medical "professionals" really don't know...
SKumbera@...
Jun 2, 2005 5:01 am
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I´m sorry to hear of Your loss Evadne. Just a thought to Andrea, say a DMD boy really loves to play electric hockey and would face the situation not to be...
To all; I am somewhat surprised that so many of our children have not had heart and lung tests. Believe it or not, in 1978 the MDA clinic in Tucson (of which...
ILuvMere@...
Jun 2, 2005 12:06 pm
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Not sure if you guys are ready for this, but since the heaven topic is prevailing at the moment I thought I would share my expierences thru Davey. Ever since...
Greg Evans
gregevans01@...
Jun 2, 2005 12:18 pm
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Carol. At Hopkins, the nuro/muscular dr we saw, told us that when we make our appointment to see him, also make to so cardio, pulmon. And orthopiac as well....
Dana, There is a very good text on respiratory care, what to check and when, what to do, etc. It is a consensus statement published by the American Thoracic...
I just wanted to underline once more that the cardiac testing listed in the ENMC guidelines is considered by the authors to be minimal care: "The aims of the...
I would like to say that I was told once by a doctor that if the child is not breathing properly this could lead to heart problems so it is very important to...
JoyceGlass@...
Jun 2, 2005 1:20 pm
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Well, you know the Bible says Heaven is beyond what we can imagine...and every culture has imagined a variety of different things. After all, think of the...
wow, thanks so much for all of that info George, as I said I always read everything on here to watch out for things I did not know, We go to the Neuromuscular...
Most of the time stomach problems are just GI related like constipation or gastritis/GERD, etc. The very severe heart condition with a large, dilated heart...
Hi Adele,, I think I trust the info from here more then the doc's or specialists, and most of the time when I approach the doc's with info from here,, they...
Is that movie Miracle in Lane 2?? I sure cried with that one. Here is my two cents. I think us trying to understand what heaven is going to be like is...
Vikki said: "I never worry about it though, there's no doubt Heaven will be wonderful, and full of at least as many surprises as we have misconceptions." Kinda...
