LoinPainHematuriaSyndrome : LPHS

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For those suffering with Loin Pain Hematuria Syndrome - a very misdiagnosed and mysterious kidney disorder

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Hello All Hello. My name is Stepheny. I'm 35 and I got diagnosed with LPHS about 2 years ago. Like most people I encountered lots of ER doctors and even a urologist Posted - Sun Mar 8, 2009 4:17 am	harleyeden Offline Send Email
(No subject) I am not sure if I am sending these posts right or not, so please bear with me. I'm so relieved to see others out there still posting to this group...this is Posted - Tue Mar 3, 2009 3:51 am	Erica Floyd elf_on.pleasant Offline Send Email
Re: Are there any other LPHS sufferers posting this group anymore? Hello again, You are my daughters age. I am very sorry that you are suffering greatly. I do understand completetly how you feel. The pain is so hard Posted - Sun Mar 1, 2009 10:29 pm	Melanie Deigert mushroommell Offline Send Email
Re: Are there any other LPHS sufferers posting this group anymore? Hi Erica, I am 22 and live in Scotland in the UK and I also have LPHS. Unfortunately over here it is a very unknown illness so I was diagnosed and then Posted - Sun Mar 1, 2009 9:35 pm	fiona mciver fiona_fefe Offline Send Email
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