Here is a tentative schedule of events that we have planned for the Social. Times are approximate, any questions or additions let us know. WoodNRoses@......
Wow, Looks like quite a party!! Just a reminder, If you did not indicate your choice for the dinner at the Saturday night dance, please let us know! And are...
Hi Gang How has everyone doing? For those of u who missed the social, u missed a great time. We truely wish you could have been there. How is everyone doing...
Well? Let's see! Did I remember you? That's a good question. Of course I do. I am sorry you were feeling sick. I've been sick as well this past week. How...
This is the first meeting of what's hoped to be a new FFB chapter in the San Fernando Valley. I will be contacting Michael about having real-time captions for...
Hello all! Well I think we have finally recovered from the social.... just kidding. We are good to meet anytime everyone else is, and we think we need to...
HELLO EVERYONE, I AGREE WITH PAM AND JIM THAT WE GET TOGETHER AGAIN MAYBE EVERY TWO MONTH IF POSSIBLE. EITHER ON EARLY FRIDAY EVENING OR ANY SUNDAY AFTERNOON ...
ramachh@...
Aug 16, 2006 6:51 am
505
Is anyone taking Vitamin A palmate for their RP? If so, was your doctor supportive? Tammy...
Hi Tammy Yes, Jim takes Vitamin A Palmitate and this is what Dr Heckenlively recommended and Dr Saraff at Jules Stein agrees. Our internist agrees also and...
Hi Tammy: Like Jim, I saw Dr. Heckenlively at the Stein Eye Institute at UCLA. Dr. Heckenlively diagnosed my Usher Syndrome - hearing loss and RP in early...
Hello Tammy, I also agree with Diane and Jim as Dr. John Hickenlively also gave me same prescription and have no liver problem too. He is now working at ...
ramachh@...
Aug 18, 2006 2:20 am
509
Hello All! I just wanted to point out that there are some retinal degenerative doctors/researchers out there now that are recommending DHA over Vitamin A...
Lisa, You did answer a question I had regarding the difference between vitamin A and vitamin A palmitate. You also shared petinent information I never heard...
Hi again! This is a friendly reminder that If any of you need information on supplements, or anything else related to having a retinal degenerative disease, I...
Hi there I would like to welcome the new people to the group, My name is Marc G. I was doaged with RP when I was 35 some 19 years ago. Yes doing the math...
Hi there I would like to welcome the new people to the group, My name is Marc G. I was doaged with RP when I was 35 some 19 years ago. Yes doing the math...
Ok guys, so when is our next gathering???? Ron offered his place, we could do a backyard BBQ here. Sherri can you see about reserving the West LA Rec ...
Hi all: Pam asked about a date for the next get-together. My only request for September is that it NOT be on a Saturday, or Labor Day weekend. And Sunday,...
Hello everyone, I requested change of e-mail address for this group. I do not know what had been displayed when you received an e-mail from me. However, I've...
Any weekend is fine with me. If we going to meet Sunday afternoon, I prefer to meet around 2:00p.m. I'm just a fanatic church-goer, you know. I'm usually...
Sunday October 1st 1pm Both of these are in Chinatown, I know Hop Louie's has a bit more to offer in the way of a quieter place so that we can talk and...
Hello Pam, I vote for Empress Pavilion. OK. So let me know the result. Grandpa Ray....
ramachh@...
Sep 11, 2006 3:22 am
521
I'd vote for the quieter place. Cindy...
Steve & Cindy
flerman@...
Sep 11, 2006 12:48 pm
522
I vote for Hop Louie's because it's supposed to be quieter. Is it dark inside? I have a small battery operated lamp if needed. I also wouldn't mind a little...
Next time we meet, whenever and/or whereever, I vote for a sign up sheet to be passed around for each participant to sign up to host a RP Social each month....
Well, From the sounds of things, Hop Louie it is! You cannot miss this location: 950 Mei Ling Way is right in the center of the main Chinatown where you...
Hello Pam, Thanks for the result and will be there on October 1 at one p.m. in Hop Louie. See you then, Grandpa Ray....
ramachh@...
Sep 12, 2006 6:43 am
527
Hi gang I like the idea of Hop Louie's as well. Thank you Pam of setting this up. Do we have a phone # and directions. We will be driving and need to know...
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