HOH-LD-News
Vol. 39, Issue 11
June 13, 2009

Copyright (C) 2009 Hearing Loss Web, LLC. All rights reserved.

~~~~~~~~~~~~~~~~~
Table of Contents
~~~~~~~~~~~~~~~~~

- Article 1: Edging Toward A Cure For Hearing Loss And Deafness

- Article 2: HLAA Advice on Purchasing Hearing Aids

- Article 3: Changes to Air Travel Regulations

- Article 4: Short Takes

Our advertisers make it possible for us to provide HOH-LD-News
as a free service. Please let them know you appreciate their
support, and please mention that you saw their message in
HOH-LD-News.

- Advertisers in this Issue
First Premium Placement:
YOUR AD HERE
Second Premium Placement:
Last Minute Gift Ideas at Big Discounts
Third Premium Placement:
Hearing Aid Repairs from Hearing Haven
Classified Section:
One Online Store, one Hearing Aid Liner, and three
Employment Opportunities

~~~~~~~~~~~~~~~~~
Contact information and disclaimers are at the end of this newsletter.
~~~~~~~~~~~~~~~~~


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~~~~~~~~~~~~~~~~~
- Article 1: Edging Toward A Cure For Hearing Loss And Deafness
By David Chidakel
~~~~~~~~~~~~~~~~~

Editor: One of our readers pointed me to a very interesting
article on a very interesting blog by David Chidakel. It's a
great summary of much of the work underway that's directed at
cure hearing loss, but it also includes a rant about hearing
aids and some other interesting stuff.

So I contacted David and he graciously allowed me to share his
thoughts with you. And when you have some time, you might brew a
fresh pot and point your browser to
http://www.scienceaintsobad.blogspot.com/ for some of David's
other fascinating articles!

~~~~~~~~~~~~~~~~~

"I hope that in five years, we are at a point that we can say
that it is possible to cure deafness, at least in an animal."
Dr. Stefan Heller. August 7, 2006

Stick your fingers in your ears. Both of them. Can you hear your
cell phone ring? Is the guy on CNBC saying "vrumph, vrumph,
vrumph?"

It's called "hearing loss".

I've had "fingers stuck in my ears" for years. And there are
invisible fingers lusting for your ears too. About 10% of the
population has hearing problems. If you stick around long
enough, it'll probably happen to you. More than half of
"seniors" are affected by this annoying and, often, disabling
thing.

HAIR CELLS AND HEARING

If the gills of our swimming ancestors hadn't evolved into the
ears of homo sapiens, we wouldn't have developed speech. No
point in talking if you can't hear the words. And, without
speech, we humans could still stand up straight and could still
throw rocks. But it wouldn't be quite the same, would it? So
imagine how disappointing it is to discover that our wonderful
and much taken for granted ears wear out! In fact, they are SO
delicate! A good thumping beat at a high volume slowly and
inexorably grinds up our gears. It's like your mother said,
"Turn down the damn VOLUME before we BOTH go deaf!"

You may remember from biology class, that the ear has a cochlea
that looks like the spirals of a sea shell. Inside this cochlea
are hair cells ("stereocillia") on a membrane. They're made of
actin, the same stuff that makes muscles flex. When sound waves
wash over the hair cells, they're bent back and forth,
converting mechanical motion into electrical signals for the
nervous system.

This structure, the cochlea, tantalizes researchers. Obviously,
this is where the action is. But, because of its location in the
body, it's hard to study. The size of the hair cells, a few
hundredths of a millimeter in width, doesn't help much either.
But it is these delicate cells that are complicit in the most
common type of deafness: age-related hearing loss (presbycusis).
Once damaged, they're gone forever. It's this sad fact that
explains why most of us adults are slowly, slowly losing our
high frequency hearing. Or worse.

FIXING THE PROBLEM

In the modern era, some hearing problems can be addressed with
surgery or by removing impacted ear wax. Leaches, ear candling,
aldosteron, B12, folic acid, and hypnosis are all in there
somewhere too. But there doesn't seem to be much you can do
about the slow drip-drip-drip of age-related hearing loss except
go find yourself a hearing aid (see rant below).

HOWEVER, in the 1980's, it was discovered that hair cells in the
ears of birds DO regenerate. [http://tinyurl.com/n6f62u]
Sensational news!

As the scientific world discovered the potential of stem cells
which can differentiate into all kinds of things, researchers,
such as Stefan Heller of Stanford University, began to look for
connections. In 2002, Dr. Heller, then at Harvard, discovered
that stem cells are present in the inner ear of human beings,
suggesting that there's a latent potential for regeneration of
hair cells. One of his goals is to develop a drug that can be
introduced into the ear as an ear drop.

I don't mind admitting that he's one of my heroes. In this video
[http://www.spokenword.org/program/261239], he describes what
he's up to.

THE AUDACITY OF HOPE

Headlines can be heartbreakers. I like science. Why ELSE would I
write about it? But headlines like Cell Transplants May Cure
Deafness and Cultivated Ear Cells May Lead To Cure For Deafness
raise hopes only to crush them again under the cruel heel of
"maybe" and "someday". These breakthroughs ARE important steps
and MAY lead to a cure. But, not to be cynical, they're more
likely to lead to another round of grants for the lab. I guess
that's a TERRIBLE way to introduce this section because there IS
a lot of great science being done:

The role of neurotrophins [http://tinyurl.com/d62wlh], chemicals
that bathe the auditory nerve, is being worked out by Robin
Davis, Professor of Cell Biology and Neuroscience, Rutgers.

Dr. Karen Avraham, Department of Human Molecular Genetics,
Sackler School of Medicine, Tel Aviv University, has shown that
"microRNAs" can be responsible for hair cell death.
[http://tinyurl.com/lzu2ml] If I understand this right, it's an
exciting insight for people whose hearing starts to go at a
younger age. The therapy would involve inserting microRNAs
directly. Science now. Medicine later. Maybe.

Hair cells are kept "tuned up" by certain proteins. Knowing how
this happens [http://tinyurl.com/njax9l] seems to be another
important step in understanding what can go wrong. Very
interesting and very basic.

Helge Rask-Anderson, Professor of Experimental Otology, Uppsala
University, is studying growth of stem cells and trying to find
ways to coax them into the right places with electromagnetic
fields. [http://www.physorg.com/news159637580.html] Cool!

Marcelo Rivolta of the University of Sheffield is working with
human ear cells created in the lab with fetal cells.
[http://news.bbc.co.uk/2/hi/health/7974795.stm]

Work in Italy with stem cells from human umbilical cord blood.
[http://www.sciencedaily.com/releases/2008/09/080903134211.htm]

HEARING AIDS - A RANT

What's wrong with hearing aids? Don't get me started!

WHAT a disconnect between the wearer, often elderly or very
young, and a device which is easily damaged and high
maintenance! Good ones are expensive, rarely covered by medical
plans, and are often uncomfortable. And you gotta be SO good to
use these things right. Choosing the right one, inserting it
right, maintaining it, keeping it free of wax and knowing what
to do under which conditions, dealing with telecoils and various
"program settings", manipulating tiny controls in crazy places.
This is hard stuff. And I'm a Biomedical Engineer! No wonder so
many hearing aid users give up.

Knowing when they're on the fritz and need a trip to the
audiologist might SEEM like the easy part. But it isn't. The
changes in hearing may be gradual and hearing isn't as obvious
as sight. Maybe your spouse is mumbling. And getting caught in
the rain or forgetting to remove them before showering can
destroy an investment of thousands of dollars.

Even IF you're really good at all this stuff, hearing aids just
don't bring you all the way back. Not even the best of them. It
ain't like the old days. The High Fi's gone.

But they help. And I don't mean to be ungracious.


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~~~~~~~~~~~~~~~~~
- Article 2: HLAA Advice on Purchasing Hearing Aids
~~~~~~~~~~~~~~~~~

Editor: Hearing aids are a huge investment, and far too many of
them end up in dresser drawers because they don't do what the
purchaser expected them to do. HLAA has come out with a
checklist to help you ask the right questions before you
purchase aids. For more information, please point your browser
to http://www.hearingloss.org/learn/hearingaids.asp

~~~~~~~~~~~~~~~~~

What do you know about purchasing a hearing aid? If you've never
done it, the process can seem daunting. But even if you've been
purchasing hearing aids for some time, there may be pertinent
questions you haven't asked in a long time, or perhaps never
thought to ask at all.

For example, when you go to your hearing aid dispenser to
purchase a hearing aid, do you ask to see a hearing aid that
includes a telecoil program? Do you know how many microphones
the hearing aid has?

Do you know what your hearing aid rating for cell phone use is
and how to use that information when purchasing a cell or
cordless phone? Do you talk about assistive listening devices?
And does your dispenser keep you up to date about alerting
devices? Do you know how to best protect yourself in case of a
fire or other emergency?

Do you know how much the hearing aid itself costs and how much
you are being charged for the services of the dispenser? Those
services often include several return visits. Many consumers do
not return to the dispenser at all, because they don't want to
"bother" the dispenser. It's great to know that return visits
are part of the package, and even better to know exactly how
many return visits your dispenser provides.

When you purchase hearing aids, state law can provide
protections to consumers. Do you know how long you have for a
trial period under state law? Do you know what non-refundable
fees will be charged even if you return the hearing aid during
the trial period?

Consumers Union reported in April 2003 that a woman returned her
new hearing aids to her dispenser during the trial period, a
week after she got them. The dispenser charged $4,600 for the
aids plus $270 in non-refundable "mold" and "preparation" fees.
When she returned the aids, the dispenser charged a "restocking
fee" of $690. She paid a total of $960 for a one-week attempt to
try hearing aids that she determined she could not use. This
woman did file a complaint, noting, "I'm unable to account for
your charge of $690 for restocking. What does this cover?"

We hope you are never charged a "restocking fee" of $690. Still,
you need to know what you could be charged. Some states have
stringent regulations protecting consumers; others have nothing
in place at all. But even in those states where laws are in
place, it's often difficult to find out what the law is. You
need to ask the right questions, before you buy.

Consumer Checklist

Hearing Loss Association of America has created a "Purchasing a
Hearing Aid: A Consumer Checklist" to help you ask the right
questions about testing, dispensing and trial of hearing aids.
Take the checklist with you next time you purchase a hearing
aid, and return completed checklists to our office. [See
http://www.hearingloss.org/learn/hearingaids.asp]

Hearing Loss Association of America
Attn: Advocacy Department
7910 Woodmont Ave., Suite 1200
Bethesda, MD 20814

We will aggregate the information and report what we find. We'll
be interested to see if there are any trends to follow.

Questions about this checklist? Contact Lise Hamlin, director of
public policy and state development.


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~~~~~~~~~~~~~~~~~
- Article 3: Changes to Air Travel Regulations
By Cheryl Heppner
~~~~~~~~~~~~~~~~~

Editor: Here's Cheryl's report on the changes to air travel
regulations that took effect last month. Frankly I'm
disappointed. It looks to me like some of the regulations make
it HARDER for people with hearing loss, rather than easier. But,
as Cheryl notes, we continues to fight for improved access.

You may share this report, but please be sure to credit NVRC.
See credit at the end of the article.

~~~~~~~~~~~~~~~~~

On May 13, 2009 the Air Carrier Access Act's (ACAA) new
regulations went into effect. The Deaf and Hard of Hearing
Consumer Advocacy Network coalition is working on a consumer
fact sheet about the regulations that will be made available to
the public.

Here is a very brief summary of some of the changes:

- For the first time, the ACAA goes beyond the Americans with
Disabilities Act and covers temporary disabilities.

- Passengers traveling with a service animal on flights longer
than 8 hours, and passengers with both severe vision and hearing
disabilities, must give 48 hours advance notice and check in one
hour before the general public check in time.

- Passengers with both severe hearing and vision impairments may
be required to travel with a safety assistant if they cannot
communicate with personnel adequately to understand safety
instructions and be able to safely evacuate the aircraft on
their own.

- Air carriers must offer equal access to information and
services through TTY or relay and the service must be free,
available for the same hours, and publicized any place where
their telephone number is listed.

- All airports must have relief areas for service animals and
passengers traveling with a service animal must be given a
bulkhead or non-bulkhead seat on the plane as requested.

- All public areas of a terminal must have captioning turned on
at all times on TVs or have displays that are able to display
captions; new or replacement TVs or displays must have
high-contrast captioning capability.

- On board the plane, effective communication must be provided
so deaf or hard of hearing passengers have "timely" access to
information such as weather, on-board services, flight delays
and connecting gates.

I have been working with other consumer advocates for more than
11 years to improve air travel access. Many of the things we
have fought for were not included in the new regulations.

A major example is that if you are deaf or hard of hearing you
must still "self-identify" to receive services such as notice
when it is time to board or information being broadcast on the
plane. This means that you must tell airport and airline
employees that you are deaf or have a hearing loss each place
where you need access - curbside or regular check-in, at the
gate, on the plane, in the baggage area, etc. We already know
that this doesn't work and must continue to push to make air
travel accessible through visual displays of information and
other simple but effective methods. We also know these methods
help everyone; witness the number of people who cannot hear the
PA system in an airport and flock to the screens showing
departure, arrival, and baggage location for their flight.

Other things that are missing include access to in-flight
entertainment and accessible options for phones throughout the
airport which connect to hotels, transportation and other
services.

I will continue to meet with officials in the Department of
Transportation to pursue these improvements.

To compare the old Air Carrier Access Act with the new one,
visit this website:
http://www.swdbtac.org/html/topical/aircarrier/index.html

~~~~~

(c)2009 by Northern Virginia Resource Center for Deaf and Hard
of Hearing Persons (NVRC), 3951 Pender Drive, Suite 130,
Fairfax, VA 22030; www.nvrc.org. 703-352-9055 V, 703-352-9056
TTY, 703-352-9058 Fax. You do not need permission to share this
information, but please be sure to credit NVRC.


~~~~~~~~~~~~~~~~~
- Article 4: Short Takes
~~~~~~~~~~~~~~~~~

Editor: Here are our picks of some additional stories that you
may find interesting. For more, please point your browser to:
http://www.hearinglossweb.com/news/curr.htm

~~~~~~~~~~~~~~~~~~~

Does disability really need to be 'fixed'?

But those who are culturally deaf are worried about the future
of their language and their way of life, both of which are
beloved to them. I can identify with their fears, because I was
born deaf to an all-deaf family. American Sign Language is my
native language. I graduated from the Minnesota State Academy
for the Deaf, where I enjoyed a rich education. I went to
Gallaudet University, the world's premier institution of higher
education with a mainly deaf student body. It was where my
parents met and where I fell in love with a deaf woman who is
now my wife. Although our three sons are hearing, ASL is their
native language, and they are members of the signing community
as much as we are. I love being deaf and would not change it for
the world. Like many deaf people, I don't consider deafness as
an impairment.

http://tinyurl.com/mo2fmd

~~~~~~~~~~~~~~~~~~~

Starkey Labs makes hearing aid controlled by cell phone

Stockport-based hearing manufacturer Starkey Laboratories has
developed technology that allows hearing aid users to control
their devices with a mobile phone. The T2 technology is a
feature of the company's new S Series hearing device, which
allows a touch tone telephone to adjust volume, to switch memory
settings or to mute the hearing aid. The company said the
product will help users who can often feel self-conscious when
having to manually adjust a switch on their aid, or use a
separate remote control to change settings.

http://tinyurl.com/mq69el

~~~~~~~~~~~~~~~~~~~

Researchers work to refine cochlear implants

Duke University audiologist Molly Justus looked like a
recording-studio engineer as she adjusted a 16-band equalizer
designed to improve the performance of Joan Ernst's cochlear
implant, a high-tech hearing device inside her ear. Justus was
aiming to make what Ernst heard through the computerized device
closely resemble the nuanced notes that used to come through her
trained musician's ears. A retired teacher and choir director,
Ernst is one of an estimated 36 million Americans with hearing
loss, but one of only about 38,000 who have received cochlear
implants.

http://www.newsobserver.com/news/story/1561451.html


~~~~~~~~~~~~~~~~~~~
- Classifieds
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One Online Store, one Hearing Aid Liner, and three Employment
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Exciting Career Opportunities at GLAD
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Employment Opportunity 2
Various Employment Opportunities
Georgia School for the Deaf
Cave Spring, GA

Employment Opportunity 3
Total Communication/Auditory Oral Early Childhood Instructor of
the Deaf and Hearing Impaired
Idaho School for the Deaf and the Blind
Nampa, Idaho


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Employment Opportunity 1
Exciting Career Opportunities at GLAD
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Exciting Career Opportunities at GLAD

GLAD is an Affirmative Action Employer with equal opportunity
for men, women and people with disabilities. For more
information on the following positions, please go to:
www.gladinc.org. The status of all positions is: Regular,
Full-time, Non-Exempt, Full Fringe Benefits unless otherwise
noted. All positions are open until filled.

* Job Developer/Interpreter - Anaheim, Pacoima, Santa Ana, CA
* Community Interpreter (Two positions open) - Los Angeles, CA

If interested for any of these positions then please submit
resume and application to:

Jeff Fetterman
Human Resources Specialist
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2222 Laverna Avenue
Los Angeles, CA 90041
V/TDD: (323) 550-4207
Fax #: (323)550-4204
E-mail: jfetterman@...


-------------------
Employment Opportunity 2
Various Employment Opportunities
Georgia School for the Deaf
Cave Spring, GA
-------------------

Currently accepting applications for the following positions:

Assistant Director for Residential Services - see
http://www.hearinglossweb.com/res/emp/gsd2.htm
Assistant Director of Instruction (12 mth. position)
Teacher - Graduation Coach (10 mth. position)
Teacher - High School Math (10 mth. position)*
Teacher - Middle School Language Arts (10 mth. position)*
Teacher - Middle School Science (10 mth. position)*
Teacher - Reading Content Specialist - Pre K-12 (10 mth. position)*
Accountant Paraprofessional (12 mth. position)
Housekeeper (12 mth. position)
Job Coach (hourly paid)
Instructor - Residential Services (12 mth. position)
Residential Advisor (10 mth. position)*
Secretary I (12 mth. position)
Speech Language Pathologist (10 mth. position)*
Substitute Teachers (hourly paid, based on credentials)
Systems Support Tech (IT Assistant) (12 mth. position)*

* 10 month employees work 200 days (10 months) but receive
payroll checks during each of the 12 months of the year.

For more information about these positions, visit the Georgia
Department of Education web site at
http://www.doe.k12.ga.us/pea_hr_jobsearch.aspx

Download Job Applications at:
http://www.spa.ga.gov/word/jobinfo/stateapp-emp.doc

Completed applications may be mailed, e-mailed, or faxed to:

Denise Clark, Personnel Office
Georgia School for the Deaf
232 Perry Farm Rd. SW
Cave Spring, Georgia 30124
denise.clark@...
Fax: (706) 777-2240


-------------------
Employment Opportunity 3
Total Communication/Auditory Oral Early Childhood Instructor of
the Deaf and Hearing Impaired
Idaho School for the Deaf and the Blind
Nampa, Idaho
-------------------

Begin Date: August 2009

Nature of Work: Develop and implement a continuum of educational
activities for D/HH preschool age children; develop IEP goals
and attend other meetings required for the delivery of
educational services; teach one session of total communication
and one session of auditory oral preschool; other duties as
assigned.

Minimum Qualifications: Idaho Standard Exceptional Child
Certification with a Hearing Impaired Endorsement; Early
Childhood Endorsement preferred; Experience teaching deaf
children in Total Communication/Auditory Oral Settings;
Bachelor's degree required, Master's degree preferred.

Salary: Commensurate with education and experience.

Benefits: Comprehensive fringe benefit package included.

To Apply: Interested persons are to submit a letter of
application, resume, official transcripts, copies of
certification and three letters of recommendations to:

Idaho School for the Deaf and the Blind
ATTN: Human Resources
1450 Main St
Gooding, ID 83330

Location: Parkview Early Learning Center, Nampa, Idaho

Closing Date: Open until filled.

Successful candidate will be required to furnish a background
check within three months of employment per Idaho Code 33-130.

Hiring is done without regard to race, color, religion, national
origin, gender, age or disability. In addition, preference may
be given to veterans who qualify under state and federal laws
and regulation. If you need special accommodation to satisfy
testing requirements, please contact the Human Resources
Department.

Department of Human Resources, 1450 Main St, Gooding, ID 83330
208.934.4457


~~~~~~~~~~~~~~~~~
- Contact Information and Disclaimers
~~~~~~~~~~~~~~~~~

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