This group is just getting started. Maybe you can help me get more families involved locally. If you know of anyone interested, feel free to invite them to...
Hi. I've been meaning to write back to you and tell you a little bit about my family and I. I am 22 years old and am originally from New Hampton, Iowa. My...
Hi Autumn, (I love that name!) I have not met another child with Septo-Optic Dysplasia/Optic Nerve Hypoplasia in this area. Meadow has also had problems since...
Lora, Hey. Was glad to here from you. Wow, what a small world. Sounds like you have your hands full. Dylan sees Dr. Elsis in Birmingham for his eyes. Hes a...
Hope you all had a Merry Christmas!!! Meadow is doing well as of now. She recently had a stomach bleed around her G-tube and had to go in the hospital 2 weeks...
I am not the greatest at computers, so I will try to explain how I add pictures to the Photo Gallery. First click on "Dylan's folder", then click "Add Photo"....
Meadow is doing well, her appetite is actually better than beforehand. We are supposed to go to Shriner's Hospital in Lexington, KY this Thursday. We are going...
Hi Shan, I wanted to tell you I love the pictures you added. Ashanti is so cute in her birthday picture!!! If you e-mail me a picture, I can add it to the home...
Hi Autumn, Dylan is so adorable!!! I am glad you were able to get the pictures on the group. Now I can put a name with a face!! I went to the AIBD for the...
Hey Lora, Thank you. Yeah it took me a minute to figure out how to post them, but i remembered you said it takes a while so i put them on and left the computer...
How often is Dylan receiving vision therapy? Right now Meadow is only getting it 2ce a month. Myra told me I could request it more often, if I feel like she...
Local support group meeting will take place on Tuesday, February 13, @ 6:30pm. It will be held at Long Lewis Ford conference center in Muscle Shoals. There...
Hi, sorry i havent written in a while. been pretty busy. dylan has vision therapy twice a month also. myra usually comes on thursdays. this month she will be...
Hi Autumn, Do you take Dylan to Children's to see endocrine? Meadow sees Dr. Latif (mostly in Huntsville, sometimes B'ham). Does he take a steroid (stress...
Hey Tina, Welcome to the group!! You are from B'ham correct? Have you attended an IEP workshop? For those interested, there is one in March in B'ham. Meadow...
Hey..We're from just up the road from Killen in Salem, AL ...we've done a lot of surgeries at Birmingham...Jake goes to clinic at Huntsville now though. Tina ...
How far is Salem? Meadow goes to Huntsville in May for neuro and endocrine appt. She will have surgery next month at UAB for soft palate only. : ( She has been...
Salem is between Rogersville and Athens off of hwy 99 (you cut across from hwy 72). Jake had complete uclp and had speech therapy in our home until he was...
Hi Ramona, Welcome to the group! Meadow is also 2 yrs. Her birthday is in September. When is Leah Faith's birthday? Feel free to introduce yourself and family....
Hi, I'm Ramona, my daughter, Leah Faith is 2 years old. Her Birthday is September 30th. She was diagnosed with Lobar Holoprosencephaly, Dandy-Walker...
oh my goodness. that is so cool that dylan's picture is on the homepage. i was really excited when i seen it. i showed my husband and he couldnt believe it, he...
I was checking out the photos of the little sweeties. They are all so adorable!!! I saw Ashanti, Dylan, and Meadow. I'm not sure if there were more, but those...
If you have any questions about growth hormone, let me know. Meadow has been on it for a year now. She takes Nutropin AQ pen. It is pretty easy to use. (I...
Hey Ramona, Your girls are gorgeous!! Leah Faith has a beautiful head full of curls!! I don't think I ever told you, but I spoke with the nurse at Carter ...
Lora, The Carter Centers told us that Leah Faith has something that doesn't have a name. Nancy Clegg said that she has a lot of similarities to Lobar HPE,...
Wow, what a lot of similarities our girls share! Meadow's birthday is September 23, 2004. She also sees Myra Clement from AIDB twice a month. Meadow goes to...
Lora, It sounds like our girls are a lot alike. Leah Faith also sees Dr. Metz in B'ham, but her neurologist is Dr. Mathisen at St. Vincent's in B'ham. We...
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EP-AL@yahoogroups.com
Mar 3, 2007 4:57 pm
Reminder from: EP-AL Yahoo! Group http://groups.yahoo.com/group/EP-AL/cal UCP Telethon Sunday March 4, 2007 11:00 am - 4:00 pm (The next reminder for this...
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EP-AL@yahoogroups.com
Mar 4, 2007 4:03 pm
Reminder from: EP-AL Yahoo! Group http://groups.yahoo.com/group/EP-AL/cal UCP Telethon Sunday March 4, 2007 11:00 am - 4:00 pm Location: The Valley's CW Phone:...
Hi all! Did anyone get to watch the CP Center Telethon today?? Meadow was on there from about 1:30 until 4 pm. She was sooo good the whole time. She was at the...
