Local support group meeting will take place on Tuesday, February 13, @ 6:30pm. It will be held at Long Lewis Ford conference center in Muscle Shoals. There...
Hi, sorry i havent written in a while. been pretty busy. dylan has vision therapy twice a month also. myra usually comes on thursdays. this month she will be...
Hi Autumn, Do you take Dylan to Children's to see endocrine? Meadow sees Dr. Latif (mostly in Huntsville, sometimes B'ham). Does he take a steroid (stress...
Hey Tina, Welcome to the group!! You are from B'ham correct? Have you attended an IEP workshop? For those interested, there is one in March in B'ham. Meadow...
Hey..We're from just up the road from Killen in Salem, AL ...we've done a lot of surgeries at Birmingham...Jake goes to clinic at Huntsville now though. Tina ...
How far is Salem? Meadow goes to Huntsville in May for neuro and endocrine appt. She will have surgery next month at UAB for soft palate only. : ( She has been...
Salem is between Rogersville and Athens off of hwy 99 (you cut across from hwy 72). Jake had complete uclp and had speech therapy in our home until he was...
Hi Ramona, Welcome to the group! Meadow is also 2 yrs. Her birthday is in September. When is Leah Faith's birthday? Feel free to introduce yourself and family....
Hi, I'm Ramona, my daughter, Leah Faith is 2 years old. Her Birthday is September 30th. She was diagnosed with Lobar Holoprosencephaly, Dandy-Walker...
oh my goodness. that is so cool that dylan's picture is on the homepage. i was really excited when i seen it. i showed my husband and he couldnt believe it, he...
I was checking out the photos of the little sweeties. They are all so adorable!!! I saw Ashanti, Dylan, and Meadow. I'm not sure if there were more, but those...
If you have any questions about growth hormone, let me know. Meadow has been on it for a year now. She takes Nutropin AQ pen. It is pretty easy to use. (I...
Hey Ramona, Your girls are gorgeous!! Leah Faith has a beautiful head full of curls!! I don't think I ever told you, but I spoke with the nurse at Carter ...
Lora, The Carter Centers told us that Leah Faith has something that doesn't have a name. Nancy Clegg said that she has a lot of similarities to Lobar HPE,...
Wow, what a lot of similarities our girls share! Meadow's birthday is September 23, 2004. She also sees Myra Clement from AIDB twice a month. Meadow goes to...
Lora, It sounds like our girls are a lot alike. Leah Faith also sees Dr. Metz in B'ham, but her neurologist is Dr. Mathisen at St. Vincent's in B'ham. We...
29
EP-AL@yahoogroups.com
Mar 3, 2007 4:57 pm
Reminder from: EP-AL Yahoo! Group http://groups.yahoo.com/group/EP-AL/cal UCP Telethon Sunday March 4, 2007 11:00 am - 4:00 pm (The next reminder for this...
30
EP-AL@yahoogroups.com
Mar 4, 2007 4:03 pm
Reminder from: EP-AL Yahoo! Group http://groups.yahoo.com/group/EP-AL/cal UCP Telethon Sunday March 4, 2007 11:00 am - 4:00 pm Location: The Valley's CW Phone:...
Hi all! Did anyone get to watch the CP Center Telethon today?? Meadow was on there from about 1:30 until 4 pm. She was sooo good the whole time. She was at the...
Meadow will be having surgery this Wednesday, March 7th. We went to pre-op Friday at Children's. Her cranio-facial surgeon said if it is possible, he will...
I hate to give you all so much info at once, but I don't want to wait til last minute. Here are some upcoming events I hope that some of you can attend: March...
Lora, I ended up missing the entire telethon!! Church lasted longer today and then we had a baby shower right afterwards. I hate that I missed it, I wanted to...
35
EP-AL@yahoogroups.com
Mar 7, 2007 5:45 am
Reminder from: EP-AL Yahoo! Group http://groups.yahoo.com/group/EP-AL/cal Surgery Wednesday March 7, 2007 All Day Location: Children's Hospital Phone:...
You and Meadow are in our thoughts and prayers, hope everything goes great! Tina in Lester, mom of Jake (10)repaired uclp ... From: EP-AL@yahoogroups.com To:...
Lora, I just wanted to check and see how Meadow is doing after her surgery. I hope she is recovering quickly. Ramona, Mom to Leah Faith (2 yrs) and Sadie Grace...
Hi everyone! Thanks for thinking about Meadow. : ) Sorry it took so long for a response, but she has been so cranky. Meadow had BOTH soft and hard palate...
Hey Tina, Do you mind sharing a little post-op/recovery stuff with me that you might remember following Jake's palate repair. Meadow is not wanting ANYTHING to...
Lora, We will continue praying for Meadow and you!! Sounds like she went through alot all at one time, bless her heart, hope she's feeling better very soon....
Lora, Bless her (and your) heart...I know how very frustrating it is for our kids to be in so much pain. I am sure with the tonsils, etc surgery too she is...
