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EBworld · EB Info World Awareness Group

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Group Information

  • Members: 75
  • Category: Other
  • Founded: Mar 14, 2006
  • Language: English
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Description

A group of moms and friends (anyone can join), active in their intent of raising awareness for Epidermolysis Bullosa.

This is not a support nor chat group. This group is different. Ideas will be presented or can be exchanged and talked about to either create EB awareness locally or via the internet or we can get together and write in mass to a particular show and things of this nature. This is, by nature, a very low volume group.

A lot of files are downloaded once a month to the list and upon joining that you can use. These files will be updated regularly to be as accurate and up to date as possible.

Anyone is welcome to submit their idea or file to be downloaded to list members monthly.

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2013 9 9 9 9 9
2012 9 9 1 9
2011 10 9 9 11 9 9 9
2010 9 9 9 9 9 9 9 9 11 10 9 9
2009 9 9 13 9 9 9 9 9 12 9 10 9
2008 11 13 12 11 9 10 9 9 9 9 11 12
2007 27 34 33 34 27 18 22 12 11 13 15 13
2006 10 20 23 27 16 2 17 32 24

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