A group of moms and friends (anyone can join), active in their intent of raising awareness for Epidermolysis Bullosa.

This is not a support nor chat group. This group is different. Ideas will be presented or can be exchanged and talked about to either create EB awareness locally or via the internet or we can get together and write in mass to a particular show and things of this nature. This is, by nature, a very low volume group.

A lot of files are downloaded once a month to the list and upon joining that you can use. These files will be updated regularly to be as accurate and up to date as possible.

Anyone is welcome to submit their idea or file to be downloaded to list members monthly.