The website below is a wonderful site for resources for clothing and (the last time I checked) bibs. We used them for specialized pajamas for James. You may...
Sandra Odell
sandraodell@...
Dec 1, 2005 7:27 pm
476
I searched "adult bibs" on the web and they have several different stores for them....
Hi Natalie, how is your little girl doing with motor stuff, such as sitting, crawling, walking? What have you found that helps so far? I am wondering, because...
That is great to hear! Let's hope that it gives you all the help you need and more. :) Sandra...
Sandra Odell
sandraodell@...
Dec 4, 2005 5:51 pm
479
hello to you and many blessings to you this holiday! i would appreciate if i could take up a few minutes of your time if you would allow, to have a couple...
Hey Guys, We are encountering problems with Melanie's g-tube and fundoplication. I am wondering if any one had come up with ideas on venting. IE venting for a...
Merry Christmas and Happy Holidays. and a Blessed New Year Hope this finds all well. we are busy here with school and cookie excanges and geting ready to...
My son Patrick Frank is 23 years old and has had a history of occaisional outbursts of anger. Sometimes these were provoked(he wanting his way with the tv or...
Carrie, when i vent Madison i usally do it a few times a day and i use a syringe. It also seems to help if i have the syringe at a lower level than her belly,...
Carrie, I have used just the syringe for venting the g-tube. I just got some tape and tape it up washed it with bleach and never had problems. I had that...
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A unique non-profit organization dedicated to providing children with special needs a tiny Shetland Pony to love and care for -- completely without charge. Our...
Hi Jill, I have a 12 year old daughter with CDC who is generally quite sweet and mild mannered. I do see someuncalled for outbursts sometimes and I attribute...
My daughter is 16 yrs old and it is so had to find things that interest her. She just sits on the couch playing with magazines. I wish there was something to...
Hi Elizabeth, would your daughter be interested in drawing? Or helping you with cooking? Does she have any siblings? Does she like music? My daughter is still...
--The teachers at school thought that the behavior guy and Dr. Domain might be to much at the same time. The behavior guy did a ables test on Sarah 'which...
Hi, We are new and our little one just turned a year old. Annie is still without teeth. Is this part of the syndrom, or is Annie just late? We are adopting...
Dear Elizabeth, My daughter is 25 and has her days of boredom and frustration... But we have found that an assortment of toys (don't worry about 'age ...
Hi everyone, My name is Nicole and I am currently reasearching Cri Du Chat Syndrome for my biology class. My partner Jennifer and I are in ninth grade. When...
Hi JIll, I have a daughter who is 22 yrs old, she graduated from her vocational program recently and is now in a day program with a coach. She has an anger...
We use much the same type of rotation for our son, James, who is 9 (egads! I'm too young for him to be 9, already!). The real fun came this morning as I was...
Sandra Odell
sandraodell@...
Dec 28, 2005 7:21 pm
496
hi, my daughter madsion is 8 1\2 months and still has not even began teething yet. I do recall reading somewhere that it is a part of the ssyndrome, but i am...
hello, I am so happy that there are wonderful people like you and your husband out there! These kids are so lovable you will be rewarded with alot of love and...
Hi Cindy, I have Melanie she is 28 months old now. Her first tooth , which was her right top tooth came in 2 weeks after her 1st b-day. Then about a month...
Hello Ladies, I am not a parent, but a teacher who has a child in my classroom who has Cri-du-chat. If I can be of any help to you, please contact me. Cindy...
Cindy, There are allot of behavior problems that we (families) have come across and I would like to know how they are handled at school, biting, pinching,...
I have noticed also that Tara seems to want to get in trouble when she is bored. She lieks to play catch and work on her therapy but I can not do that all day...
Dear Cindy, Thank you so much for responding! We really appreciate it. Let me tell you little about us. We are from Atlanta, Georgia and attend a small...
Kristen- My daughter Taylor LOVES the TV. A little too much. She gets into "trouble" when I turn the TV off. Today, I did not have the TV on, and it was...
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