Good morning. Does your son take medication for seizures? I know this medicine totally ruined another CDC child's teeth. They had to pull all of his baby...
Hi Isabel, do you still work with the girl that has CDC? Have you noticed any changes with her biting behavior? How is her communication developing? I just...
My name is Jacque and I am a new member. My son Carter was born w/Cri du chat. He is 2. I'm just looking to meet new friends w/family member w/Cri du chat. I...
My neice who is now 23 was born with dislocated hips. Hers was caught at birth, so the situation is alittle different. the drs explained that the faster the...
Hi: I would have the doctor check him for low calcium levels good luck! marirowe <marirowe@...> wrote: Hello. My son with CDC is 9 months old. I breast...
A High Five for your encouragement Kristen: I did not have a CDC pregnancy, I adopted a newborn that was diagnosed with it! He is now 14yrs old and is the key...
Hi: My son Mikey has the same thing he is now 14 yrs old when he was a baby we made him a sling that looked like a diaper to keep his hips even at night it had...
My daughter is just about 5 years old. She lost a portion of 5p and in it's place is a 3rd copy of chromosome 10q. Genetic doctors don't know much about her as...
I breast fed my daughter for 7 months as well. Is your son on any medication? My daughter's teeth got a yellowish crust on them for a while. Do you have a...
Hi, I am new to the group. My daughter Olivia is 3 and just started school. We are having a really hard time getting her to eat new foods.Right now her diet...
Meredith- My son used to also have a very limited diet. He is eight now and eats much better, but still at times give me a problem. I give him BOOST pudding ...
Have you tried a food grinder? Landen is 3 1/2 and has texture problems sometimes, so we grind up anything we are eating and he eats it well. He loves mixed...
Hi Jacquelyn, I hope you will be able to attend our conference this summer. It is a great place to meet people and share the experiences of other parents....
I had Michaels Dr prescribe Ensure for Michael as well - 3 cans a day. Medicaid paid for it. I got what ever flavor that the pharmacy would get for me. At that...
Hi Jennifer, My daughter has the del/dup of either the 5 or 2. Two different hospitals can't agree as to which it is. My daughter with CDC is 3. They told...
Hi Jacque, My name is Meredith and my daughter Olivia who is 3 has CDC. She has scoliosis as well(which is a major setback). She was doing some amazing stuff...
Hi Jacque, Welcome to the chat group. I am the mother of a 15 year old with CDC (Travis). I don't post to the group often but, I read EVERYTHING! This is a...
Hi Meredith, My daughter eats very well now. As a baby she didn't eat baby food and OT came to help me find foods that she would eat. She lived on pudding for...
My duaghter had to have surgery on her hips due to hip dysplasia. She was in a body cast for 6 weeks and then 9 months later she took her first step. ... a...
Michael still "chipmunks" his food. I have to tell him to swallow everything before I will give him more. He used to store his food and then later put his...
You guys are blowing me away. We do pudding, 500 calorie cheesecake, oatmeal, banana, sweet potato, instant carnation , and nut milk(my husband new thing)....
Hi, All, We have trouble with Leaty swallowing. She will take almost anything in her mouth and sometimes swallow. But MOST times she just wants to hold it in...
I don' t know if I have shared the news about Leaty's evaluation for a speech communication device. Her eval went well. They were trying her out on a Mini Mo....
No he doesn't. I think it might be the iron in his formula. I have made an appointment with a pediatric dentist so we'll see what he/ she says. Thanks!!! ...
It looks like she loves her sweet things. LOL Tara does also and use those to get more and better food into your child. With Tara I had to mix it in the baby...
Jennifer, that is GREAT NEWS!!!!!!!!!! I"m so happy for her and you. Let me know more when you get a chance. Hugs__ Take Care, Kristen www.taraclark2000.com ...
I know someone else that does that. But she ( Tara) waits till she is away from the table to spit it out. Which leads togiving a bit more of the good stuff...
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