This is a group to bring advocates, activists and parents of children with brain tumors specifically to discuss and work on the National Childhood Brain Tumor Prevention Network Act of 2009.

National Childhood Brain Tumor Prevention Network Act of 2009 - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH), acting through the Director of the National Cancer Institute, to establish, administer, and coordinate a National Childhood Brain Tumor Prevention Network to:
(1) provide grants for research on the causes of and risk factors associated with childhood brain tumors;

(2) assemble a panel of experts to provide ongoing guidance and recommendations on research funded by the Network, including on a common study design and standard protocols; and

(3) designate a central laboratory to collect, analyze, and aggregate data with respect to research funded by the Network and to make such data and analysis available to researchers.

You can find more information on this Act at-
http://tinyurl.com/b7zsku