Quick Note from Deb: Erin, I just wanted to thank you for getting the ball rolling. I also want everyone to know about the DHEA web page I found in case you...
saxfiend
saxfiend@xxxx.xxxx
Sep 28, 1999 7:48 am
17
First Issue: We'll be getting more people to join our mailing list after I write up a report in the Magic Society. I hope we see more activity in the mailing ...
saxfiend
saxfiend@xxxx.xxxx
Sep 29, 1999 1:10 am
18
Interresting,guess I won't be eating soy.Don't need any more dhea.Robin...
Ortiz
Ortiz3@xxxxxxx.xxxx
Sep 30, 1999 4:12 am
19
Well, there you go folks - finally something positive concerning all this DHEA swimming around in our systems! I'd like to think it's one less thing for us to...
Promecia@xxx.xxx
Sep 30, 1999 4:31 pm
20
Erin wrote: Well, there you go folks - finally something positive concerning all this DHEA swimming around in our systems! I'd like to think it's one less...
saxfiend
saxfiend@xxxx.xxxx
Oct 2, 1999 8:02 am
21
I should have written a bit more. The web page author's credentials are good, but his theories haven't been tested out, so it's sheer speculation on his part....
saxfiend
saxfiend@xxxx.xxxx
Oct 2, 1999 8:05 am
22
I was wondering how much our adrenal disorder effects our moods. I for one tend to be rather high strung. One doctor said it may because I have an artistic...
saxfiend
saxfiend@xxxx.xxxx
Oct 4, 1999 5:52 am
23
Just read Deb's post. Oh, boy! Don't even know where to start! This has been a major problem for me and not one that garners much sympathy from doctors or even...
Promecia@xxx.xxx
Oct 4, 1999 7:16 pm
24
... Yes, it IS interesting that we may be in that same group of people who can't metabolize cortisone -- UNLESS someone on our 3 Beta mailing list tells us...
saxfiend
saxfiend@xxxx.xxxx
Oct 5, 1999 5:45 am
25
Well, this is a puzzling article just written up in the New England Journal of Medicine. I'm not sure whether I sent this to the 3Beta newsletter yet, but...
saxfiend
saxfiend@xxxx.xxxx
Oct 5, 1999 11:33 pm
26
I grind my teeth,but I have a mouth piece I wear at night that the dentist made for me.My jaw used to hurt.I'm going to another fertility center.They are...
Ortiz
Ortiz3@xxxxxxx.xxxx
Oct 6, 1999 2:49 am
27
... Hi Ortiz, Yet another thing 3Betas may have in common. I've worn a bite guard for many years, too. It would be interesting to know if this imbalance also...
saxfiend
saxfiend@xxxx.xxxx
Oct 6, 1999 6:19 pm
28
I have also been diagnosed recently with CAH 3 Beta (late onset). I am 29. My symtoms have really only been an absence of menstration for most of my life. The...
michelle@xxxxxxxxxxxx...
Oct 7, 1999 12:55 pm
29
Wendy, have your adrenals been retested yet? Have you gotten the results back? Maybe all of us should get our test scores and compare them? Deb...
saxfiend
saxfiend@xxxx.xxxx
Oct 8, 1999 12:24 am
30
Hi everyone, I recently was retested for DHEA and it was lower. I think it's because I've been on a low carbohydrate diet for years now, since being diagnosed...
saxfiend
saxfiend@xxxx.xxxx
Oct 15, 1999 12:22 am
31
hello. ... From: CAHwith3BetaHSD@onelist.com [mailto:CAHwith3BetaHSD@onelist.com] Sent: Friday, October 15, 1999 5:15 AM To: CAHwith3BetaHSD@onelist.com ...
Michelle Cearley
Michelle@xxxxxxxxxxxx...
Oct 15, 1999 2:18 pm
32
Hi Deb! Here's my "hello":) I've been experiencing some problems with my e-mail. I'm not sure if it's my computer or an AOL problem. Having an awful time ...
Promecia@xxx.xxx
Oct 15, 1999 2:19 pm
33
I am receiving it.I am starting with a new dr.They do the cervical mucous charting and progesterone.They will send me to a new Endo.who will redo all my ...
Ortiz
Ortiz3@xxxxxxx.xxxx
Oct 16, 1999 4:08 am
34
... You could have both PCOS and the adrenal problem. Have you doctors checked for both? Since the doctors have your test results, they should be the ones to...
saxfiend
saxfiend@xxxx.xxxx
Oct 16, 1999 8:25 am
35
I'm not sure whether I posted this to the newsgroup yet, but after being tested, my DHEA levels were much lower. I suspect it's from being on a very low carbo...
saxfiend
saxfiend@xxxx.xxxx
Oct 26, 1999 1:02 pm
36
Hello everyone, I'd like to know if any of you have had gene testing along with blood tests for your 3Beta HSD dianosis or if your doctor diagnosed it strictly...
saxfiend
saxfiend@xxxx.xxxx
Nov 15, 1999 1:14 am
37
I did not have gene testing. The diagnosis was through blood tests. I have been referred to a geneticist, but the appointment has not been scheduled yet. The...
kebs12
kebs12@xxxxxxxxx.xxxx
Nov 15, 1999 4:47 pm
38
... Thanks for your reply, Kebs. Do you know which tests they ran to diagnose your 3Beta HSD? Have they put you on medications? What symptoms are you hoping...
saxfiend
saxfiend@xxxx.xxxx
Nov 16, 1999 7:46 pm
39
I'm now in contact with the NIH doctor who knows the most about our particular form of adrenal hyperplasia. In order to get him to do a study, I'd like to...
saxfiend
saxfiend@xxxx.xxxx
Nov 19, 1999 7:23 pm
40
Since there are a number of tests that can be taken for 3Beta HSD, I was hoping you'd like to share with the group the kind of test you took. Dexamethasone...
saxfiend
saxfiend@xxxx.xxxx
Nov 19, 1999 7:58 pm
41
... Only one person has answered this so far. Maybe I can ask another way that's clearer. If you had your choice of symtoms that you could make disappear,...
saxfiend
saxfiend@xxxx.xxxx
Nov 20, 1999 1:01 pm
42
I'd like your comments on this please... I recently went to see the doctor at the teaching hospital I go to, and I mapped out a plan via fax ahead of time....
saxfiend
saxfiend@xxxx.xxxx
Nov 24, 1999 11:29 pm
43
Ok, we need three more people who are receiving this mailing list to fill out the survey, otherwise it will be changed without having everyone's input. I plan...
saxfiend
saxfiend@xxxx.xxxx
Dec 3, 1999 10:05 am
44
http://www.infotrieve.com/freemedline/cgi-bin/std_format.cgi?med98-99+378882+(adrenal+hyperplasia) Check out the link above entitled: Prevalence of...
saxfiend
saxfiend@xxxx.xxxx
Dec 5, 1999 12:37 am
45
I'm not sure my messages have been getting out, but I'll need someone as a replacement for the 3 beta list. If one person e-mails me, I'll know this message...
