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AuditoryNeuropathy · The intent of this listserve is to provide information and emotional support to parent's of children diagnosed with Auditory Ne

Group Information

  • Members: 1172
  • Category: Deafness
  • Founded: Sep 2, 1999
  • Language: English
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4 New Members - 7 New Messages - New Questions

Description

**This list is owned and operated by Elaine Blackford and has no ties to any hospital, clinic, facility, or professionals.***
The intent of this listserve is to provide information and emotional support to parent's of children diagnosed with Auditory Neuropathy and/or Auditory Dys-synchrony. We will share our experiences, problems, successes and failures, as well as, strategies used in dealing with a child that "Is not deaf....but can't hear". Parent's often feel more isolated than the parent's of a 'typical' deaf child. This is a relatively new area of audiology where many professionals disagree on management of the condition. Many of us have received conflicting advice concerning our children's diagnosis and it's management.
Professionals that deal with children diagnosed with auditory neuropathyand/or Auditory Dys-synchrony as well as, adults with the diagnosis are also welcome to join.

Auditory Neuropathy is characterized by a pure tone loss (most cases) with poor speech discrimination in relation to the pure tone audiogram, absent or abnormal Auditory Brainstem Responses (ABR) and normal cochlear outer hair cell function when otoacoustic emissions (OAE's) are tested. Many audiologist's are simply unfamiliar with the issue's faced in parenting an Auditory Neuropathy child. Resources dealing with this problem that are written in layman's terms are limited. As parent's, we must learn all we can about the disorder so that we can become advocates for what these children need to obtain language. We have chosen varied methodologies and/or strategies to educate our children. These choices were difficult and were made based on what we, as parent's, felt was best for the family and the child. We CAN discuss our personal experiences with a methodology, in relation to how successful it has been for our children with Auditory Neuropathy. PLEASE SHOW RESPECT TO THE CHOICES OF OTHER FAMILIES.

*****Debating methodologies is NOT appropriate on this list.*

Message History

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2010 178 208 28
2009 239 132 159 77 135 172 142 98 98 73 94 93
2008 200 337 265 551 151 129 182 287 246 274 175 186
2007 217 344 117 148 133 87 131 140 202 237 182 61
2006 298 192 341 226 149 295 210 236 257 351 168 155
2005 336 345 452 298 211 172 148 201 350 484 222 120
2004 400 139 292 418 270 152 186 180 125 148 206 97
2003 355 286 333 441 211 217 214 373 313 173 91 119
2002 133 150 193 182 81 80 149 177 227 132 158 113
2001 493 161 168 166 171 110 112 216 151 120 435 110
2000 229 216 220 121 301 173 375 241 270 224 338 286
1999 77 220 146 89
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