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ClubRett
468 Members,
Archives:
Membership required
Our Mailing List is for ADULTS who have a Rett Syndrome Angel in their life. It is a place to share ANYTHING you want to talk about. (And we DO talk about anything) If you have problems ...( more)
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ANZACRett
50 Members,
Archives:
Membership required
This group has been created for families, caregivers, friends etc who have children/adults affected by Rett Syndrome in Australia and New Zealand. However families from anywhere in the ...( more)
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CDKL5
51 Members,
Archives:
Membership required
This group is for parents, family members and friends of those affected by CDKL5 disorder in various forms including Atypical Rett syndrome, West syndrome, Infantile spasms and Autism. ...( more)
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Rettangels
68 Members,
Archives:
Membership required
This list was created for families/friends/ caregivers to share the experiences of having a child who has been diagnosed with both or either of these two conditions (Angelman Syndrome / ...(more)
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| 5 |
rettoric
26 Members,
Archives:
Membership required
Newsgroup for parents of children with Rett syndrome in the southern California area. Members of this group will share information, resources, discuss fundraising, and offer support to ...( more)
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| 6 |
RettsNW
This list is for anyone affected by Rett Syndrome in the Northwest,Oregon, Washington, Idaho, Montana etc. The list is to provide support, resources, information, happenings or just kick ...(more)
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| 7 |
bc_rett_syndrome
Rett syndrome symptoms appear after an early period of apparently normal or near normal development until six to eighteen months of life, when there is a slowing down or stagnation of ...( more)
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| 8 |
RettSyndromeParents
213 Members,
Archives:
Membership required
A place for Rett Syndrome Parents to talk about- discuss and share thoughts- idea's and questions about Rett Syndrome.
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| 9 |
NLRettNet
< 5 Members,
Archives:
Membership required
Ouders, verzorgers en begeleiders van Rett Syndroom patienten 0
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| 10 |
silantthoughts
< 5 Members,
Archives:
Membership required
this is a group that we are trying to put together for parents and care givers to get together and find answers. we all have to work together to cope with the path that rett syndrome is ...( more)
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