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beckwith-wiedemann
1100 Members,
Archives:
Membership required
The Beckwith-Wiedemann List A support and information exchange for caregivers of and people with BWS. Supporting the efforts of the Beckwith-Wiedemann Children's Foundation ...( more)
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nnpdf
266 Members,
Archives:
Membership required
The National Niemann-Pick Disease Foundation provides family support, educational programs, and research funding into all forms of Niemann-Pick Disease. This mailing list is provided as ...( more)
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xxynoy2
133 Members,
Archives:
Membership required
A "support/discussion List" for Moms and/or Dads whose son's genetic signature is XXY(or a variation thereof) and whose son's age is between onset of puberty through adulthood.
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c22c
456 Members,
Archives:
Membership required
This email group has been established in the interest of all Chromosome 22 disorders. Families, teachers, and other professionals can meet here and discuss concerns, share ideas, give ...( more)
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sms-list
823 Members,
Archives:
Membership required
Keywords:Smith- Magenis Syndrome , sms, disorders. The SMS Mailing list is designed to promote the exchange of information and communication about Smith-Magenis syndrome among parents, ...(more)
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XXYNOY
260 Members,
Archives:
Membership required
This is a list for parents of xxy sons, or other sex chromosome anomalies. Learning and supporting each other is the goal. It is a restricted list and members must be approved by the ...( more)
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chromosomedeletionoutreach
517 Members,
Archives:
Membership required
Chromosome Disorder Outreach, Inc. (CDO)[formerly Chromosome Deletion Outreach, Inc.] is a non-profit organization providing support & information to families affected by any rare ...( more)
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FVLeidenNL
256 Members,
Archives:
Membership required
Nederlandse mailinglist voor mensen met Factor V leiden of soortgelijke stollingsafwijking/ problemen (apc resistentie, proteine s/c deficientie, factor II, antitrombine III, ...(more)
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AAKSIS
413 Members,
Archives:
Membership required
The AAKSIS E-Mail List has been formed to provide discussion, support, and fellowship for the international community of those medically diagnosed as being XXY (and variants), or having ...( more)
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tetrasomy18p
110 Members,
Archives:
Membership required
A private community for those who have loved ones with this rare genetic syndrome. It is a syndrome based on chromosome 18.
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